Resources for Parents

Disability Organizations

NAPCSE offers its members detailed information about numerous national organizations and associations dedicated to exceptional children and their parents.  These include addresses, phone numbers, web addresses, contact information, and descriptions of each.The topics listed are individual websites on national disability associations and organizations that can be accessed only by members of The National Association of Parents with Children in Special Education (NAPCSE).  If you are not a member of NAPCSE, and would like to join, click here to register. Members of NAPCSE, please log in above (member login and password) to activate these, and all other websites, in our database.

  • Alexander Graham Bell Association for the Deaf and Hard of Hearing

  • Alliance for Technology Access

  • American Association of Kidney Patients (AAKP)

  • American Association of Suicidology

  • American Brain Tumor Association

  • American Council of the Blind

  • American Diabetes Association

  • American Foundation for the Blind (AFB)

  • American Heart Association-National Center

  • American Liver Foundation

  • American Lung Association

  • American Occupational Therapy Association (AOTA)

  • American Physical Therapy Association (APTA)

  • American Society for Deaf Children

  • American Speech-Language-Hearing Association (ASHA)

  • American Syringomyelia Alliance Project

  • American Therapeutic Recreation Association

  • Angelman Syndrome Foundation

  • Anxiety Disorders Association of America

  • Aplastic Anemia & MDS International Foundation, Inc.

  • The Arc (formerly the Association for Retarded Citizens of the U.S.)

  • ARCH National Respite Network & Resource Center

  • Arthritis Foundation

  • Asthma and Allergy Foundation of America

  • Autism Society of America

  • Beach Center on Disability

  • Best Buddies International, Inc.

  • Birth Defects Research for Children, Inc. (BDRC)

  • Blind Children’s Center

  • Brain Injury Association of America

  • CADRE (Consortium for Appropriate Dispute Resolution in Special Education)
    Direction Service, Inc.

  • Center for Effective Collaboration and Practice (CECP)

  • Center for Universal Design

  • Child and Adolescent Bipolar Foundation

  • Childhood Apraxia of Speech Association of North America (CASANA)

  • Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)

  • Children's Craniofacial Association

  • Children's Liver Alliance (Web site only)

  • Chronic Fatigue and Immune Dysfunction Syndrome Association (CFIDS)

  • Closing the Gap, Inc.

  • Consortium for Appropriate Dispute Resolution in Special Education

  • Council for Exceptional Children (CEC)

  • Craniofacial Foundation of America

  • Crohn's & Colitis Foundation of America

  • Cystic Fibrosis Foundation

  • Depression and Bipolar Support Alliance

  • Disabled Sports USA

  • Easter Seals--National Office

  • Epilepsy Foundation-National Office

  • FACES: The National Craniofacial Association

  • Families and Advocates Partnership for Education (FAPE)

  • Family Center for Technology and Disabilities

  • Academy for Educational Development (AED)

  • Family Empowerment Network:

  • Family Resource Center on Disabilities

  • Family Village

  • Family Voices (a national coalition speaking for children with special health care needs)

  • Federation of Families for Children's Mental Health

  • Forward Face

  • Foundation for Ichthyosis and Related Skin Types

  • Genetic Alliance

  • Head Start Bureau

  • Human Growth Foundation

  • Huntington's Disease Society of America

  • Hydrocephalus Association

  • IBM Accessability Center

  • IDEA Partnerships

  • Immune Deficiency Foundation

  • Independent Living Research Utilization Project

  • International Dyslexia Association

  • International Resource Center for Down Syndrome

  • International Rett Syndrome Association

  • Internet Mental Health (Web site only)

  • Job Accommodation Network (JAN)

  • Kristin Brooks Hope Center

  • LDOnline (Web site on learning disabilities)

  • Learning Disabilities Association of America (LDA)

  • Let's Face It USA

  • Leukemia & Lymphoma Society (formerly Leukemia Society of America)

  • Little People of America-National Headquarters

  • Lupus Foundation of America

  • MAGIC Foundation (Major Aspects of Growth Disorders in Children)

  • March of Dimes Birth Defects Foundation

  • Mental Help Net (Web site only)

  • MUMS, National Parent-to-Parent Network

  • Muscular Dystrophy Association (MDA)

  • National Alliance for the Mentally Ill (NAMI)

  • National Association for the Dually Diagnosed (NADD)

  • National Association of the Deaf

  • National Association of Hospital Hospitality Houses

  • National Association of Private Special Education Centers (NAPSEC)

  • National Association of Protection and Advocacy

  • National Ataxia Foundation

  • National Attention Deficit Disorder Association

  • National Brain Tumor Foundation

  • National Center for Learning Disabilities (NCLD)

  • National Center for PTSD (Post-Traumatic Stress Disorder)

  • National Center on Physical Activity and Disability (NCPAD)

  • National Chronic Fatigue Syndrome and Fibromyalgia Association (NCFSFA)

  • National Council on Independent Living

  • National Down Syndrome Congress

  • National Down Syndrome Society

  • National Eating Disorders Association

  • National Federation for the Blind

  • National Fragile X Foundation

  • National Gaucher Foundation

  • National Kidney Foundation

  • National Library Service for the Blind & Physically Handicapped

  • National Limb Loss Information Center

  • National Lymphedema Network

  • National Mental Health Association

  • National Mental Health Information Center

  • National Multiple Sclerosis Society

  • National Neurofibromatosis Foundation

  • National Organization for Albinism and Hypopigmentation (NOAH)

  • National Organization on Disability (NOD)

  • National Organization on Fetal Alcohol Syndrome (NOFAS)

  • National Resource Center for Family Centered Practice

  • National Resource Center for Paraprofessionals in Education and Related Services

  • National Resource Center on Supported Living and Choice

  • National Reye's Syndrome Foundation

  • National Scoliosis Foundation

  • National Sleep Foundation

  • National Spinal Cord Injury Association

  • National Stuttering Association

  • National Tay-Sachs and Allied Diseases Association

  • Neurofibromatosis, Inc.

  • NLD (Nonverbal Learning Disorder) on the Web

  • Nonverbal Learning Disorders Association

  • Obsessive Compulsive Foundation, Inc.

  • Osteogenesis Imperfecta Foundation

  • Parents Helping Parents: The Parent-Directed Family Resource Center

  • Parents of Galactosemic Children

  • Parent to Parent of the United States

  • Pathways Awareness Foundation

  • Prader-Willi Syndrome Association

  • Recording for the Blind and Dyslexic

  • Registry of Interpreters for the Deaf

  • RESNA (Rehabilitation Engineering and Assistive Technology Society of North America)

  • Schwab Learning

  • Scleroderma Foundation

  • Special Needs Advocate for Parents (SNAP)

  • Special Olympics International

  • Spina Bifida Association of America

  • Stuttering Foundation

  • TASH (formerly the Association for Persons with Severe Handicaps)

  • Technical Assistance Alliance for Parent Centers (the Alliance)

  • Tourette Syndrome Association

  • Trace R&D Center

  • Tuberous Sclerosis Alliance

  • United Cerebral Palsy Association, Inc.

  • United Leukodystrophy Foundation

  • U.S. Society of Augmentative and Alternative Communication

  • Vestibular Disorders Association

  • Williams Syndrome Association, Inc.

  • World Association of Persons with disAbilities

  • Zero to Three--(National Center for Infants, Toddlers, and Families)