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NAPCSE Parent Special Education e-Journal

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NAPCSE Parent Special Education e-Journal

April 2005

Table of Contents

PRESIDENTS MESSAGE - DR. GEORGE GIULIANIClick here

FROM THE U.S. OFFICE OF EDUCATION & SPECIAL EDUCATION - Click here

  • The Office of Special Education Programs (OSEP) Publishes Part Two of Attention Deficit Hyperactivity Disorder (ADHD) Resource for School and Home
  • Students with Disabilities to Gain Improved Access to Learning
  • Study Shows Educational Achievement Gender Gap Shrinking
  • National Progress Being Made in Serving Students with Limited English Proficiency
  • Spellings Urges House to Pass $56 Billion Education Budget

NAPCSE FOCUS QUESTION : WHO HAS A LEARNING DISABILITY ANYWAY? -  Click Here

STATE AND DISTRICT WIDE TESTING - HOW DOES IT AFFECT CHILDREN IN SPECIAL EDUCATION? - Click Here

  • Resources for Including Children with Disabilities in State and District-Wide Assessments

 NAPCSE CONTROVERSIAL ISSUE - ZERO TOLERANCE IN SCHOOLS - DOES IT WORK? - Click Here

IMPORTANT INFORMATION ABOUT EARLY CHILDHOOD EDUCATION - Click Here

  • National Early Childhood Transition Searchable Database (Web Page)
  • Infection Puts Extremely Low Birth Weight Infants at Risk for Developmental Delays
  • Children Born in 2001: First Results from the Base Year of the Early Childhood Longitudinal Study, Birth Cohort (ECLS-B)
  • Virtual Pre-K Makes Lessons Real Tutor.com: Virtual Relief for Homework Headaches
  • Close-Up: No Child Left Behind—Early Reading First Starting School After Early Childhood Education
  • Rapid New Test Developed for Inherited Immune Deficiency--Newborn Screening Could Detect Bubble Boy Illness Early, Save Lives

IMPORTANT INFORMATION ABOUT THE EDUCATION OF EXCEPTIONAL CHILDREN - Click Here

  • Antidepressants for Children Must Have Warnings: FDA Advisers
  • The Characteristics, Experiences, and Outcomes of Youth with Emotional Disturbances
  • Home Schooling
  • Serving Youth with Hidden Disabilities

BULLYING—IS IT PART OF GROWING UP OR A PART OF SCHOOL VIOLENCE? - Click Here

IMPORTANT INFORMATION ABOUT EXCEPTIONAL TEENAGERS - Click Here

  • Combination Treatment Most Effective for Adolescents with Depression
  • Young Drivers with Attention-Deficit/Hyperactivity Disorder

NEED A PUBLISHER OF A BOOK SPECIFIC TO YOUR CHILD’S NEEDS?HERE ARE DISABILITY PUBLISHERS FOR YOU TO KNOW - Click Here

LEGAL ISSUES AFFECTING PARENTS OF CHILDREN WITH DISABILTIES - Click Here


  • Individuals with Disabilities Education Improvement Act (IDEA 2004) Update
  • What are the Major Changes Between IDEA 1997 and IDEA 2004?
  • Individuals with Disabilities Education Improvement Act and No Child Left Behind
  • Summary of IDEA 2004--From the National Collaborative on Workforce and Disability

AMERICANS WITH DISABILITIES ACT (ADA) - Click Here

  • The American’s with Disabilities Act- Job Applicants and Employees with Intellectual Disabilities
  • New Fact Sheet on Employment Rights of People with Intellectual Disabilities
  • Righting the Americans with Disabilities Act
  • U.S. Department of Labor Office of Disability Employment Policy--Dispelling Myths about the Americans with Disabilities Act

OTHER SPECIAL EDUCATION/DISABILITY LEGAL CASES - Click Here

  • Court to Hear ADA Suit Over Cruise Ships: Spector v. Norwegian Cruise Line
  • Mother Sues, Alleges Abuse in Special Education
  • Bush Signs Youth Suicide Prevention Bill-Grants Include Money for Early Intervention
  • Quadrapalegic Attorney Settles “Apprentice Lawsuit

NO CHILD LEFT BEHIND (NCLB) - WHAT’S THE LATEST WITH NCLB? - Click Here

  • No Child Left Behind-Standard Technology for Students with Disabilities
  • Making the No Child Left Behind Act Work for Children Who Struggle to Learn: A Parent's Guide (2004)-Guidebook
  • New National Survey Shows Public Support for No Child Left Behind Act is Increasing; Recent Negative Attacks & Distortions on Education Reform Law Have Fallen Flat
  • New Parent Guide on NCLB
  • More on NCLB from NCLD
  • NCLB Implementation in Rural America
  • Close-Up: No Child Left Behind—What Works Clearinghouse
  • Making the "No Child Left Behind Act" Work for Children Who Struggle to Learn
  • A Guide to Education under the No Child Left Behind Act--Homework Help
  • Close-Up:No Child Left Behind—Improving Student Achievement Through Technology

PARENTS - GOT THE HOMEWORK BLUES? NAPCSE HAS GOT THE ANSWERS - Click Here

THE NATIONAL INSTITUTE OF HEALTH (NIH) - ARTICLES THAT AFFECT CHILDREN WITH SPECIAL NEEDS - Click Here

  • NIH Funds Centers to Study Islet Transplantation
  • NIMH Grant to Explore Genetics of Autism
  • Psychotherapy and Medications are Best for Youth with Obsessive Compulsive Disorder (OCD)
  • Brains of People with Autism Recall Letters of the Alphabet in Brain Areas Dealing with Shapes-Finding Supports Theory That Autism Results From Failure of Brain Areas To Work Together
  • National Heart, Lung, and Blood Institute (NHLBI) Stops Study Testing How Long Children with Sickle Cell Anemia Should Have Blood Transfusions to Prevent Stroke
  • U.S.-Born Mexican Americans and Non-Hispanic Whites at Increased Risk for Psychiatric Disorders -Findings Raise New Questions About Influence of Culture
  • ADHD Linked to Mom's Iodine Levels
  • Eating at Fast Food Restaurants, Weight Gain, and Insulin Resistance in Young Adults
  • Gene That Blocks Regrowth of Hearing Cells Identified for the First Time
  • International Coalition to Fund Autism Genetics Research
  • Mothers’ Exposure to Air Pollutants Linked to Chromosome Damage in Babies
  • Scientists Use Gene Therapy to Restore Hair Cells in Deaf Guinea Pigs

OTHER ARTICLES OF INTEREST FOR PARENTS WITH CHILDREN IN SPECIAL EDUCATION - Click Here

  • Emergency Preparedness and Individuals with Disabilities
  • Streaming Allows Deaf to Learn Online
  • Online Learning: A Smart Way to Nurture Gifted Kids
  • Union Seeks Streamlining for Special Ed Formula
  • Parents Working to Eliminate Hurtful Acronym for Special Education
  • In Their Own Words: Employer Perspectives on Youth with Disabilities in the Workplace (Guidebook)
  • Bullying-A Discussion and Activity Kit to Use with Children
  • Buddies Help Students with Autism
  • Research from The National Council on Disability: Designing for Inclusion- Creating a New Marketplace
  • Deciphering A Mystery: New Research Provides Clues To The Genetic, Neurological, And Molecular Basis Of Autism
  • Top 10 Toys for Children with ADHD
  • ParentAcademy Could Help Kids Learn
  • Survey Invitation for Educators of English Language Learners and Students with Disabilities
  • 2004 National Organization on Disability/Harris Survey of Americans with Disabilities
  • Technical Sign Language Guide Goes Online
  • Reading the Brain: Technology May Soon Tell Researchers Why Some Kids Have Trouble Reading
  • InclusionEffortsHelpIndianapolisSchool Cope with Poverty, Turnover, Special Needs
  • National Suicide Prevention Lifeline 1-800-273-TALK
  • Top Ten Titles for Students with Print Disabilities Released by Recording for the Blind & Dyslexic
  • Maryland Test a Problem for Deaf Students--Questions Ask Students to Match Words by Sound
  • Bullies Target Diabetic Youths
  • Preparing for an International Career: Pathways for People with Disabilities


UPCOMING CONFERENCES AND EVENTS FOR PARENTS OF CHILDREN IN SPECIAL EDUCATION - Click Here

ACKNOWLEDGEMENTS - Click Here

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PRESIDENT’S MESSAGE

President’s Message from Dr. George Giuliani

Welcome To the April, 2005 edition of The NAPCSE Parent Special Education e-Journal. We hope the 2005 spring season is a happy, healthy, and productive one for all of you.

The past few months have been extremely busy here at NAPCSE. As always, we are committed to making sure that you are kept up-to-date with all of the most current information in the field of special education. As such, we have added, and continue to add, hundreds of new sites to the data base this year.

In April, we began the new NAPCSE Parent Forum. Here, you can:

Post new topics in the field of special education

  • Reply to other peoples' topics on special education
  • Edit your posted messages on special education issues
  • Receive email notification of replies to posted messages on special education topics and topics in special education that you specify
  • Send private messages to other forum parents or special education professionals who are Forum members
  • Enter special education events in the Forum calendar
  • Set up a 'buddy-list' of other special education professionals/Forum members to quickly see which of your friends are currently online


To keep the NAPCSE Parent Forumfresh, we encourage you to visit it and always feel free to give us suggestions on ways in which we can improve not only the Forum but NAPCSE as a community.

Finally, remember that NAPCSE is your organization, and anything we can do to enhance your knowledge of any issue in special education, we will very seriously take into consideration. We wish a very happy, safe, and healthy spring season (and for those of you in the Northeast, no more snow!!)

Sincerely,

Dr. George Giuliani

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FROM THE U.S. OFFICE OF EDUCATION & SPECIAL EDUCATION

The Office of Special Education Programs (OSEP) Publishes Part Two of Attention Deficit Hyperactivity Disorder (ADHD) Resource for School and Home

OSEP announces a new publication, Teaching Children with Attention Deficit Hyperactivity Disorder: Instructional Strategies and Practices. The report, designed for teachers, other school staff, and families, describes an overall strategy for successfully instructing students with ADHD. Suggestions of research-based academic instruction, behavioral interventions and classroom accommodations are provided. For more details, visit: http://www.ed.gov/about/reports/annual/osep/index.php#adhd-res2

Students with Disabilities to Gain Improved Access to Learning

Students with blindness, low vision and print disabilities are expected to gain improved access to textbooks under a voluntary standardized format for electronic files, U.S. Secretary of Education Rod Paige announced today. On behalf of Secretary Paige, Deputy Secretary of Education Gene Hickok discussed the new standard at an event commemorating the 14th anniversary of the Americans with Disabilities Act. The event was co-sponsored by the Departments of Commerce and Education in Washington, D.C.

"President Bush believes that every single child can learn and deserves the opportunity to learn—that's why he pushed for the historic education reforms of the No Child Left Behind Act," Secretary Paige said. "Today, we're taking another step toward this goal with a new, voluntary standard that will enable students and teachers to more quickly access general curriculum materials, thereby opening more doors of opportunity to students."

When textbooks and classroom materials are produced using this voluntary standard, they will be in a standard electronic format that can be adapted to products ranging from Braille editions of textbooks to on-screen displays of text and graphics. In past years, the lack of a standardized format meant that publishers had to produce materials in multiple formats—often causing delays that meant students with disabilities did not receive their textbooks in time for the beginning of the school year.

To address these challenges, the Department of Education's Office of Special Education Programs provided funding to the NationalCenter on Accessing the General Curriculum at the Center for Applied Special Technology, Inc. to convene an expert panel to establish a voluntary, standardized format for materials. The 40-member panel included educators, publishers, technology specialists and advocacy groups.

In addition to establishing the new standard, the Department of Education will fund two centers to support further development and assist states with implementing the voluntary standard, thus improving academic results for students with disabilities.

The No Child Left Behind Act is the bipartisan landmark education reform law designed to change the culture of America's schools by closing the achievement gap among groups of students, offering more flexibility to states, giving parents more options and teaching students based on what works. Under the law's strong accountability provisions, states must describe how they will close the achievement gap and make sure all students, including students with disabilities, achieve academically.

For more information on the National Instructional Materials Accessibility Standard, please visit http://www.cast.org/NFF/NIMAS/.

Study Shows Educational Achievement Gender Gap Shrinking

Many of the educational gaps between males and females have been closed. The large academic achievement gaps that once existed between males and females have been eliminated in most cases and have significantly decreased in others, according to a new study by the U.S. Department of Education.

In elementary school, female fourth-graders outperformed their male peers in reading (2003) and writing (2002) assessments. Gender differences in mathematics achievement have been small and fluctuated slightly between 1990 and 2003. At the secondary school level, the gap in the National Assessment of Educational Progress (NAEP) reading achievement grew from 10 points in 1992 to 16 points in 2002, with males performing lower than females. Females entering college baccalaureate programs were more likely than their male counterparts to graduate within six years. In 2001, the overall participation rate of females in adult education was higher than that of their male peers (53 percent vs. 46 percent).

Other findings are that:

  • Females are less likely to repeat a grade and to drop out of high school.
  • Differences based on gender in math and science course-taking appear to be shrinking.
  • Female high school seniors tend to have higher educational aspirations than their male peers
  • Females have made substantial progress at the graduate level overall, but they still earn fewer than half of the degrees in many fields.

"It is clear that girls are taking education very seriously and that they have made tremendous strides," said U.S. Secretary of Education Rod Paige. "The issue now is that boys seem to be falling behind. We need to spend some time researching the problem so that we can give boys the support to succeed academically."

The study presents comparisons between males and females regarding preprimary education, elementary and secondary education, postsecondary education, and educational outcomes. Women overall have made substantial gains over the past 30 years educationally, although they are still underrepresented in some fields of study, such as computer science, engineering, and physical sciences, as well as more generally in doctoral and first-professional degree programs, the study found.

Trends in Educational Equity of Girls and Women was produced by the Department's NationalCenter for Education Statistics in the Institute of Education Sciences, and responds to legislation under the No Child Left Behind Act. It is an update and substantial revision of an earlier study released in 2000.

To download or view the report, please visit: http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2005016

National Progress Being Made in Serving Students with Limited English Proficiency

Thanks to No Child Left Behind, for the first time, all states have developed and implemented English language proficiency standards and annually assessed English language learners, according to a new report from the Department about the progress of serving these five million students in our schools.

"FY 2002-2004 Biennial Report to Congress on the Implementation of NCLB, Title III, the State Formula Grant Program" is the first in-depth report to Congress containing data from the 50 states, the District of Columbia and Puerto Rico concerning the English language acquisition and academic achievement of limited English proficient students (LEPs) since NCLB was enacted. (English language learners or ELLs are also known as limited English proficient or LEP students.)

Prior to the implementation of NCLB in 2002, few states had developed these standards that now help teachers measure each student's progress in learning English. Currently, all states and the District of Columbia and Puerto Rico have established English language proficiency standards that are linked to state academic content standards in English in reading/language arts and mathematics.

"States have made significant progress toward implementing new Title III English language acquisition requirements in a very short period of time," said Secretary Margaret Spellings. "When President Bush envisioned helping all children in America who had previously been left behind, he knew that our English language learners faced some of the greatest challenges. That's why he made sure that the federal government played a vital role in ensuring their educational success, while at the same time, allowing the states the flexibility required to implement the Title III LEP language instruction programs effectively."

With the $477 million distributed through the Title III State Formula Grant program in FY 2003, states served more than four million LEP students. Based on the most currently available data from the states, there are approximately 5.1 million LEP students nationwide. Title III services reach approximately 80 percent of these students. Before NCLB, only approximately 15 percent of these students were being served through federal LEP programs nationwide. The change from competitive program grants to state formula grants means that many more LEP students are now being served.

"NCLB reflects a fundamental transformation in the relationship between the federal government and the states with regard to the education of LEP students," said Kathleen Leos, associate assistant deputy secretary of the Office of English Language Acquisition. "As a result, we are no longer funding programs, we are funding children."

States that receive Title III grants must also reserve up to 15 percent of their award for subgrants to local education agencies that have experienced a significant increase in the number of immigrant children and youths enrolled in schools.

Important data provided by the states about programs and participants in the 2003-04 school year indicate that:

  • 51 of 52 state education agencies (includes D.C. and Puerto Rico) reported serving a total of 4,042,428 LEP students through 4,867 Title III formula subgrants to districts [local education agencies (LEAs)];
  • 45 of 52 state education agencies (includes D.C. and Puerto Rico) reported funding 1,389 additional subgrants to LEAs that experienced significant increases in the number of immigrant children and youths;
  • All 52 state education agencies (includes D.C. and Puerto Rico) reported that out of a total of 1,218,238 immigrant children and youths, 827,638 were served by Title III;
  • 51 state education agencies reported that 316,273 certified or licensed teachers were working in language instruction programs specially designed for ELLs;
  • All state education agencies reported using at least one type of English language instruction program offered through Title III, with 40 states using some type of a bilingual program in addition to their English as a second language (ESL) programs;
  • 36 states, D.C. or Puerto Rico reported that 385,794 students transitioned out of language instruction programs into mainstream classrooms in 2002-03. In 2003-04, 44 states reported 447,905 students transitioned out of such programs.

"The No Child Left Behind changes for LEP students are making a big difference in the way our school systems view these children," added Spellings. "Because their achievement and progress must be carefully monitored and reported, there is more attention being placed upon their learning and ultimate success. We cannot afford to leave any group of children behind."

"No Child Left Behind has had a profound impact on the lives of these children and their families," said Leos. "Parents are getting more information about the progress of their children, and the law requires that they be notified in a language that they understand. They also have more options as to what program is best for their child. Recent studies have shown that most immigrant parents want their children to learn English, and this report shows us that these dreams are, in fact, being fulfilled."

Students are first identified as LEP by a state-approved English language proficiency assessment and then are recommended for placement in a language education program. The goal of these programs is that LEP students acquire English to allow them to achieve in academic content areas such as reading/language arts and mathematics in English at the same level of academic success established by the state for all students. Title III does not endorse or promote any specific type of language education program for LEP students, and states have the choice to use ESL or bilingual programs. Title III does require, however, that any language programs and professional development be scientifically based and effective.

States are also expected to provide professional development activities to assist personnel in meeting certification requirements for teaching LEP children. All 52 states require that all teachers of LEP students meet language fluency requirements.

Within the U.S. Department of Education, Title III is administered by the Office of English Language Acquisition, Language Enhancement, and Academic Achievement for Limited English Proficient Students (OELA).

The text of the report is available online at http://www.ncela.gwu.edu/oela/biennial05/index.php. It can also be ordered by calling toll free 1-877-4ED-Pubs (1-877-433-7827) or 1-877-576-7734 (TTY/TDD); via e-mail at edpubs@inet.ed.gov; or via the Internet at www.edpubs.org. You can also fax a request to 301-470-1244.

Spellings Urges House to Pass $56 Billion Education Budget

President's budget expands the promise of No Child Left Behind, promotes fiscal discipline and makes higher education more affordable, Spellings says U.S. Secretary of Education Margaret Spellings today strongly emphasized the need to bring accountability for results to the nation's high schools, and urged the U.S. House of Representatives to approve President Bush's proposed $56 billion FY 2006 budget for the Education Department, including the president's $1.24 billion High School Intervention initiative.

"The facts are hard to dispute: Our 15-year-olds are below average internationally in mathematics literacy and problem solving; just 18 out of 100 students enter college and graduate on time; and about two-thirds of students leave high school unprepared," Secretary Spellings said, citing studies that reflect ominously on America's high school student achievement during testimony before the House Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies.

"All this is set against a backdrop in which 80 percent of the fastest-growing jobs will require some post-secondary education," Spellings said. "It is imperative that we give our high school students the tools to succeed in the 21st century economy."

Secretary Spellings noted that the president's High School Intervention initiative will ensure that students graduate from high school with the skills they need to succeed in higher education and the workforce, and emphasized that under the president's plan, states and school districts—not the federal government—would design interventions that best meet their local needs.

In addition, the President's proposed budget would provide $250 million to measure high school students' achievement annually so that schools can be accountable for results.

"As we have learned, what gets measured gets done," Secretary Spellings said.

The President's proposed budget also includes $200 million for the Striving Readers program—a $175 million increase over 2005—and $120 million for a new Secondary Education Mathematics initiative.

Spellings also heralded the success of the landmark No Child Left Behind Act, and said the president's budget continues the "solid progress" begun three years ago when a bipartisan Congress passed the law. She noted the administration's commitment to teachers and said the budget includes a $500 million Teacher Incentive Fund to reward educators that show outstanding academic progress and to attract more of them to serve in challenging schools. Another $45 million would be invested in programs to encourage students to take more challenging coursework.

"Today, across the country, test scores are rising, schools are improving and the achievement gap is beginning to close for our youngest learners," Spellings said. "We must stay the course."

The proposed 2006 budget provides $13.3 billion—a $603 million increase or five percent more than last year—for Title I grants to help disadvantaged students. Title I funding has increased by 52 percent since President Bush signed the No Child Left Behind Act into law.

President Bush also has proposed $11.1 billion—a $508 million increase—in special education grants, which is 75 percent higher than five years ago.

For higher education, Secretary Spellings told the committee that President Bush's makes college affordability a priority. Specifically, the budget would increase Pell Grants by $100 for each of the next five years and make them available year-round so that students could learn on their own timetable.

To encourage more students to enter the critical fields of math and science—especially poor and minority students—a new Presidential Math-Science Scholars Program would be established. It would award up to $5,000 each to low-income college students pursuing degrees in these demanding and in-demand fields.

In addition, a new $125 million Community College Access Grants Fund would support dual-enrollment credit transfers for high school students taking college-level courses.

"With this budget's passage, student financial assistance will have risen from $48 billion to $78 billion during this administration," Spellings said.

Secretary Spellings also highlighted the fiscal discipline that the budget exhibits.

"We are committed to working with Congress to achieve these savings," she said. "Given the fiscal realities, we must target our resources wisely—toward flexibility and results."

The common thread among all of the president's education priorities, she said, is "aligning needs with results."

"It will not always be easy to find common budgetary ground given our nation's fiscal realities and wartime footing," Secretary Spellings said. "But I am here to listen to your priorities. The president has made tough choices. We know you will too. And we want to work with you to make the very best choices for America's students."

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NAPCSE FOCUS QUESTION:

WHO HAS A LEARNING DISABILITY ANYWAY?

IDEA 2004 changes the way schools may make eligibility decisions for student being screened for learning disabilities. The National Association of School Psychologists has three online resources to help parents understand this change in the law.

New Directions in Identifying Learning Disabilities
www.teachersandfamilies.com/open/parent/idea1.cfm
These pages highlight the definition of learning disabilities, ways to identify students with learning disabilities, and what the changes in IDEA will mean for struggling students.

Learning Disabilities: A Primer For Parents About Identification
www.nasponline.org/publications/cq325ldinsert.php
Here, you'll find eligibility issues covered in more detail.

Response to Instruction in the Identification of Learning Disabilities: A Guide for School Teams
www.nasponline.org/publications/cq325instruction.php
"Response to instruction" is one method that may be used with a struggling student to determine if he/she meets the criterion for having a learning disability. Read more at the link above.

For a historical look at this change, see Who is Learning Disabled?, from the American Psychological Association, online at:
www.apa.org/monitor/sep03/disabled.php

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STATE AND DISTRICT WIDE TESTING—HOW DOES IT AFFECT CHILDREN IN SPECIAL EDUCATION?

Resources for Including Children with Disabilities in State and District-Wide Assessments

The NationalDisseminationCenter for Children and Youth with Disabilities (NICHCY) recently connected readers with sources of information on including children with disabilities in state and district-wide assessments. This is an area of considerable concern and endeavor for state and local education agencies, educators, and families alike. Federal law--specifically, the Individuals with Disabilities Education Act (IDEA)--requires that students with disabilities be included in large state or district assessment programs. In order to enable children with disabilities to participate in such general assessments, appropriate accommodations may be made, as necessary, as well as modifications in how the assessments are administered (including individual modifications, as appropriate). The decision as to whether a particular child will participate in a particular assessment belongs to the IEP team. The IEP team also specifies what accommodations or modifications that child will need in order to participate.

However, a student's IEP team may also determine that the student cannot participate in a particular State or district-wide assessment of student achievement or part of such an assessment, even with modifications. If this is the case, the team must include a statement in the IEP as to why the assessment is not appropriate for the student and how he or she will be assessed. Under the law, the state or local education agency (SEA / LEA) must then assess the child using an alternate assessment.

It's complicated---and yet very important. There is enormous pressure for accountability, and states routinely use high stakes testing programs that require students to reach a specified competency level in order to graduate. Thus, how these tests affect students with disabilities is an area of continuing concern. We hope the resources we've listed below will be useful to parents and professionals alike. They focus upon discussions of what high stakes testing means for students, what types of accommodations and modifications states are using to enable their participation, and what alternate assessments are being designed for students whose IEP teams determine that they cannot participate in a particular state or district test.

The list below isn't intended to be exhaustive of the resources available on including children with disabilities in state and district assessments---it's ever-growing. NASET thanks NICHCY for the use of this information for it’s newsletter

What's Required---and Why?

Frequently asked questions--and answers.
www.education.umn.edu/nceo/TopicAreas/Participation/participation_FAQ.php
The participation of students with disabilities in state and district assessments is a special topic area of the NationalCenter on Educational Outcomes (NCEO). If this topic is new to you, you'll want to start your investigation with NCEO's FAQ (Frequently Asked Questions). What do you want to know? NCEO tries to answer the questions most people start with.

Education reform: What does it mean for students with disabilities? http://ici2.umn.edu/ntn/pub/briefs/edre.php
This brief will tell you why there's such a fuss about assessments, how students with disabilities participated in the past, and how they'll participate now.

All Kids Count: Including students with disabilities in statewide assessment programs. http://fcsn.org/peer/assess.php
The guide you'll find at the link above is a product of the PEER Project, a technical assistance project formerly funded by the U.S. Department of Education, Office of Special Education Programs. All Kids Count is intended as a basic primer on the participation of students with disabilities in statewide assessment systems. Its purpose is to give parents, parent leaders, professionals, and other interested parties basic guidelines and points of reference for participating in discussions around policies and practices related to the inclusion of students with disabilities in large-scale assessment programs.

Assessing students with disabilities: Issues and evidence. www.cse.ucla.edu/reports/TR587.pdf
This 2003 report discusses major issues raised by the inclusion of students with disabilities in large-scale assessments and summarizes pertinent research.

Any guidance from the feds? www.dssc.org/frc/fed/OSEP01-06.FFAssessment.pdf
Guidance on Including Students with Disabilities in Assessment Programs is available from the Office of Special Education Programs (OSEP), U.S. Department of Education. Find the family-free version at the link above. The same information, prepared for state directors of special education, is available at: www.dssc.org/frc/AssessmentQ%26A.php

What are the positive aspects of including students with disabilities in assessment programs?www.education.umn.edu/nceo/OnlinePubs/Synthesis51.php
When investigators document the consequences of high stakes assessments for students with disabilities, many negative consequences are cited. The NationalCenter on Educational Outcomes (NCEO) examined both empirical and anecdotal evidence for positive consequences of large-scale high-stakes assessments for students with disabilities. This report synthesizes their findings.

Test Accommodations

Accommodations: Making it possible for students to show you "what they got." www.education.umn.edu/nceo/TopicAreas/Accommodations/Accom_topic.php
And we're back at the NationalCenter on Educational Outcomes (NCEO), because they're the experts! Check out their resources on testing accommodations, which are "changes in testing materials or procedures that enable students to participate in assessments in a way that allows abilities to be assessed rather than disabilities." This NCEO special topic area includes, among other things, an Introduction to Accommodations (the link above) and an FAQ (Frequently Asked Questions). Find out what accommodations are, what categories they fall into, and when you'd wanna make one (or two...) for a student with a disability.

When you make a change to the test, what happens?www.ihdi.uky.edu/msrrc/PDF/Tindal&Fuchs.PDF
If you make an accommodation, does it make the student's test results any less valid? This 1999 summary addresses the issue of validity with primary consideration on using this research to implement sound testing practices and to make appropriate educational decisions.

A summary of research on test changes.
http://education.umn.edu/nceo/onlinepubs/Technical34.php
This 2002 paper, entitled "A Summary of Research on the Effects of Test Accommodations: 1999 through 2001," summarizes research on the effects of test accommodations, including: type of assessment, content area assessed, number of research participants, types of disabilities included in the sample, grade-level of the participants, research design, research findings, limitations of the study, and recommendations for future research.

Try the Online Accommodations Bibliography.
http://education.umn.edu/nceo/AccomStudies.php
The Online Accommodations Bibliography, at the NationalCenter on Educational Outcomes (NCEO), allows users to search a compilation of empirical research studies on the effects of various testing accommodations for students with disabilities. Convenient, eh? The research you'll find is the same as what's summarized in the article cited and linked in the last bullet, plus additional research studies presented or published in more recent years.

Need a toolkit or staff development tool on assessment accommodations?
www.cec.sped.org/bk/catalog2/assessment.php
Making Assessment Accommodations: A Toolkit For Educators 2000 [and Videotape] is a product of the ASPIIRE and ILIAD IDEA Partnership Projects, formerly funded by OSEP. An introductory section provides an overview of the toolkit. A 15-minute videotape looks at commonly used assessment accommodations from the perspectives of practitioners, policymakers, administrators, and parents. The Practitioner's Guide section briefly describes the most commonly used accommodations in five areas: timing, scheduling, setting, presentation, and response. The Administrator's Guide section includes a discussion of implementation along with examples of schools that have made assessment accommodations for students with disabilities. A pamphlet to share with family members is also included in this section. The final section presents suggestions and ideas for using the toolkit in staff development sessions for small study groups. To order, call The Council for Exceptional Children, 1.888.232.7733, or e-mail service@cec.sped.org.

State policies: Assessment and accommodations.
www.education.umn.edu/nceo/TopicAreas/Accommodations/StatesAccomm.php
Want to know what your state's policy is about including students with disabilities in standardized assessments? Take a look at the link above, courtesy of the NationalCenter on Educational Outcomes (NCEO), which has been tracking and analyzing state policies on participation in assessments and accommodations for more than a decade now.

And then you include the scores of students with disabilities in the state's accountability system, right? No matter what they are?
www.education.umn.edu/nceo/OnlinePubs/Technical33.php
States want to have good scores on their tests, just like any student does. If the students in the state do well on these large-scale tests, that means the state's education system is working. But what if the scores turn out lousy? No one wants to hear that bad news! Nonetheless, states have to tell us how students are doing (and, by extension, how the state's system is doing). But are they really including students with disabilities in the overall performance picture? This study, "Are we there yet? Accountability for the performance of students with disabilities," identifies and describes the accountability systems that states are using, and discusses the degree to which publicly available documents clearly articulate whether students with disabilities are included in accountability calculations.

Want more resources? Try NICHCY's TA&D Resource Library. www.nichcy.org/search.php At our "Search for Info" page (the link above), put a check in the box labeled "Resource Library (TA&D Products)," enter the search term "Assessment" (or Accommodations" or "Alternate Assessment"), and you'll get a list of all the publications and products available on the subject that are available from the TA&D (Technical Assistance and Dissemination) network funded by the Office of Special Education Programs (OSEP) at the U.S. Department of Education.

Alternate Assessments

What we know and need to know about alternate assessment.
Click here This 2003 journal article appears in Exceptional Children, Vol. 70, No. 1, pp. 45-61. It reviews promises, practices, and provisos of using alternate assessments to measure progress of students with disabilities in statewide assessment programs.

Alternate assessment: Q & A.
www.usu.edu/mprrc/infoserv/pubs.cfm#aa
This document was created as a tool for state staff, local educators, and other stakeholders who have a vested interest in creating an alternative assessment process for a state and local district. Alternative assessment is defined, and examples are offered.

Here's a ton of info on alternate assessment---all in one place.
Click here
You'll notice how often this A-Z page takes you to the NationalCenter on Educational Outcomes (NCEO)--that's because they're the experts! They offer a gratifying number of resources on alternate assessment, which is "designed to measure the performance of students who are unable to participate in general large-scale assessments used by districts and states." This NCEO special topic area includes, among other things, an Introduction (the link above), an FAQ (Frequently Asked Questions), and connection to resources on the subject.

What are your state's alternate assessment policies?
Click here
If you want to know what your state is up to, take a look at the link above, again courtesy of the NationalCenter on Educational Outcomes (NCEO), which has been tracking and analyzing state policies on participation in assessments and accommodations for more than a decade now.

A standard setting method for alternate assessments for students with significant disabilities.
www.education.umn.edu/NCEO/OnlinePubs/Synthesis47.php
Exploration of the rationale and design of the alternate portfolio assessment.

Want more resources? Try NICHCY's TA&D Resource Library.
www.nichcy.org/search.php
At our "Search for Info" page (the link above), put a check in the box labeled "Resource Library (TA&D Products)," enter the search term "Alternate Assessment" (make sure you put the phrase in quotation marks) and you'll get a list of all the publications and products available on the subject that are available from the TA&D (Technical Assistance and Dissemination) network funded by the Office of Special Education Programs (OSEP) at the U.S. Department of Education.

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NAPCSE CONTROVERSIAL ISSUE—ZERO TOLERANCE IN SCHOOLS—DOES IT WORK?

An increasing number of youth are being denied educational opportunity under the principle of "zero tolerance," which is intended to send a strong message that certain behaviors will not be tolerated. But is zero tolerance actually effective in promoting school order and safety?

The issue has been studied and written about by researchers, policy analysts, advocates, and public commentators. A growing body of research indicates that schools with a comprehensive approach to school safety that encompasses all points on the prevention-intervention continuum can effectively prevent and address school violence and disorder, without excluding students from school. Read more to find out more.

Advocating for Reform of Zero Tolerance Student Discipline Policies: Lessons from the Field
www.edlawcenter.org/ELCPublic/Publications/

And there's more about zero tolerance at the American Bar Association Juvenile JusticeCenter.
www.abanet.org/crimjust/juvjus/zerotolerance.php

Read Beyond Zero Tolerance at the American School Board Journal:
www.asbj.com/current/research.php

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IMPORTANT INFORMATION ABOUT EARLY CHILDHOOD EDUCATION

National Early Childhood Transition Searchable Database (Web Page)

The National Early Childhood Transition Research and TrainingCenter announces the availability of a new on-line, searchable database of approximately 700 early childhood transition related research, policy, and practice documents. This database is an on-going activity of NECTC and is designed to provide a one-stop resource for those interested in identifying potential transition resources. For more details, go to: http://www.ihdi.uky.edu/nectc/DATABASES/search.aspx

Infection Puts Extremely Low Birth Weight Infants at Risk for Developmental Delays

Extremely low birth weight infants, the tiniest category of premature infants, are much more likely to experience developmental impairments if they acquire an infection during the newborn period, according to a study by the Neonatal Research Network of the National Institute of Child Health and Human Development, one of the National Institutes of Health. The developmental impairments were seen regardless of the type of infection -- whether it occurred in the brain, blood or intestines.

The study was conducted by Barbara J. Stoll, M.D., of the Emory University School of Medicine in Atlanta, Georgia and her colleague. Appearing in the November 17 "Journal of the American Medical Association," the study reported that 65 percent of a group of extremely low birth weight infants had developed at least one infection during their hospitalizations after birth. These infants were more likely to have an impairment than were infants who had not developed an infection.

"This study shows us that successfully treating an extremely low birth weight infant's infection does not automatically ensure that the infant will do well," said NICHD Director Duane Alexander, M.D. "Parents and health care workers need to monitor these children carefully as they grow, and be ready to provide them with developmental and educational services, if necessary."

To learn more, visit: http://www.nih.gov/news/pr/nov2004/nichd-16.php

Children Born in 2001: First Results from the Base Year of the Early Childhood Longitudinal Study, Birth Cohort (ECLS-B)

The NationalCenter for Education Statistics released Children Born in 2001: First Results from the Base Year of the Early Childhood Longitudinal Study. The study of a nationally representative sample presents characteristics of children and families, information about children’s mental and physical skills, and their experiences in child care, as well as the extent of fathers’ involvement. To learn more, visit: http://nces.ed.gov/pubsearch/pubsinfo.asp?pubid=2005036

Virtual Pre-K Makes Lessons Real

Tutor.com: Virtual Relief for Homework Headaches

In the world of computers and high-tech gadgets the word “virtual” is most often defined as “existing in effect though not in actual fact.” Chicago Public Schools has discovered a way to make “virtual” become real through lesson plans that are available online, on videotape, or on CD. These lessons are designed for teachers, parents, and day-care providers to use when teaching preschool children.

“Virtual Pre-K”(VPK) is a teacher-created instructional tool focused on engaging preschool children in learning about themselves and the world around them. The lessons span three domains: the classroom, the home, and the community, so that classroom curriculum is integrated with home and community activities.

Designed and created for low-income families by the ChicagoPublic Schools and its Office of Early Childhood Education, Virtual Pre-K is a bilingual system in English and Spanish with tips on how to make learning come to life through hands-on activities. Teachers and day-care providers can use the video lessons in the classroom or other learning settings, and parents can use the supplemental lessons at home. Two themes in the series, All About Me and Taking Care of Me, create an educational framework to help build early literacy, math, social studies, and science skills. In addition, all lessons can be easily adapted for students with special needs.

In the classroom, teachers select a VPK lesson that relates to a current topic and plan a learning activity using the VPK Teacher’s Manual. At home, parents obtain “activity recipes” online that can be printed out to include in a "recipe box." Each recipe corresponds to a lesson used in the classroom.

For example, Virtual Pre-K has a unit called “Fun with Fruits and Vegetables.” Lessons on the video, CD, or web demonstrate to the teacher how to plant and grow vegetables from seeds and involve the children in the process. Using the same technology, parents are shown how to make a fruit and vegetable “Rainbow Salad” with the children. Then, VPK walks the parents through teaching “How Things Grow” in gardens and parks in the city or on a farm in the country.

The community domain of the program, called “Out and About,” also links to an up-to-date calendar that informs participants of preschool-appropriate events happening around their community. Parents are encouraged to connect lessons learned at school and at home with real-world experiences at public parks, theatres, museums, and other places.

In addition, parents can access other features on the colorful and easy-to-navigate Virtual Pre-K website. Friendly, illustrated characters lead visitors to links such as “the idea exchange” where discussion boards and live chat sessions are moderated by other parents and teaching professionals at Chicago Public Schools. Parents can track their child’s progress in Virtual Pre-K by following a trail of stars to a personalized “Success Chart” and by writing their own notes and observations online. VPK’s technology offers parents numerous benefits, not just for their children, but also for themselves. They can use the CD-ROM and website to develop their own computer literacy skills, and they can learn about other parenting resources on the Internet.

Alicia Narvaez, the Virtual Pre-K Director in Chicago, states, “We want to encourage the use of technology especially for parents who may not be used to computers. Surveys on our website show the demographics of our users, who are incredibly diverse both ethnically and economically. We wanted to create a program that would reach a diverse audience.”

During 2001, VPK’s first year, 4,000 teachers, administrators, parents, and others received training on the VPK model. Now, Virtual Pre-K materials are available for loan in Chicago preschool classrooms and in public libraries. Free computer access is provided at these locations and at designated VPK training sites around Chicago, making it easier for more parents to utilize the “high-tech” portion of the program.

The success of the program in Chicago has spurred the launch of the “Virtual Pre-K National Network,” an alliance of school districts and agencies created to improve parent involvement, children’s school readiness, and early education in general. During the 2003-04 school year, a spin-off project was formed, the VPK Model Classroom Initiative, which consisted of 22 Chicago early childhood teachers who met bi-monthly to plan and discuss VPK implementation in their classrooms. In June 2003 the DallasIndependentSchool District became the first national partner in the network. This school year, five California counties (San Bernardino, Los Angeles, Riverside, San Diego, and Orange) and the California Association for Bilingual Education (CABE) formed Virtual Pre-K Southern California. In each location, VPK is not only aligned with state standards, but also with the preschool curricula and goals of each unique locale.

The effectiveness of the program is measured through traditional and online surveys and through tracking by teachers and parents. Currently, the University of Chicago is working on an assessment of the first three years of Virtual Pre-K’s implementation and student performance.

More than 300 Chicago public school classrooms have adopted VPK and over 53,000 individuals have visited the website. Narvaez comments, “We [have a] 90 percent adoption rate of the program in our [Chicago preschool] classrooms,” which is significant, considering that Chicago teachers are voluntarily using Virtual Pre-K as an instructional resource.

Surveys conducted by Virtual Pre-K reveal that 57 percent of its website users are parents, who are anxious for more resources. With this information in mind, VPK is developing a “Virtual Kindergarten,” with 10 lessons and a website that targets skills and concepts specific to kindergarten learners. This initiative is designed with the idea that the VPK model can grow with parents and children.

Close-Up: No Child Left Behind—Early Reading First Starting School After Early Childhood Education

The U.S. Department of Education awarded 32 Early Reading First grants, each averaging $2.8 million, to eligible agencies and organizations across the country that were successful in a grant competition. The funding goes to help early childhood education programs prepare young children to enter kindergarten with the necessary language, cognitive and early reading skills, thus preventing reading difficulties and ensuring school success.

Part of the president's Good Start, Grow Smart initiative, Early Reading First is designed to transform existing early education programs into centers of excellence that provide high-quality, early education to young children, especially those from low-income families. The program was one of two reading programs created under the No Child Left Behind Act. Its cohort, Reading First, targets K-3 students to ensure that all children learn to read well by the end of the third grade.

Among its goals, the Early Reading First Program seeks to promote language and literacy activities developed from scientifically based reading research and that support the age-appropriate acquisition of oral language (vocabulary, expressive language, listening comprehension); phonological awareness (rhyming, blending, segmenting); print awareness; and alphabetic knowledge.

For more information, visit www.ed.gov/programs/earlyreading/index.php or call 202-260-4555.

Rapid New Test Developed for Inherited Immune Deficiency--Newborn Screening Could Detect Bubble Boy Illness Early, Save Lives

Bethesda, MD -- Researchers at the National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH), have developed a new laboratory method that rapidly identifies babies born with inherited forms of severe immune deficiency. The new genetic test, which still must be validated before widespread use, could someday be added to the panel of tests that already screen newborns for a variety of disorders.

The test identifies babies born with Severe Combined Immunodeficiency, or SCID, an illness in which the infant fails to develop a normal immune system. SCID babies can be infected by a wide range of viruses, bacteria and fungi that are normally controlled by a healthy baby's immune system. If undetected and untreated, SCID typically leads to death before the baby's
first birthday.

Developed in the NHGRI Division of Intramural Research (DIR), the new test can use the same dried blood samples already collected from newborns and would provide the first accurate, high-throughout screen for immune deficiencies. Prior efforts to identify this disorder by counting white blood cells in newborns proved unreliable and expensive.

"This new laboratory technique is an excellent example of how increasingly sophisticated genetic tools can be applied to important public health problems," said NHGRI Scientific Director Eric D. Green, M.D., Ph.D. "Here we have a chance to catch an illness early when treatment is most effective. This new approach provides a rapid, accurate indication of a possible immune problem immediately after birth while the infant is protected by the mother's antibodies still circulating in the baby's blood."

If SCID is diagnosed in time, there are effective treatments. One form of the disease can be treated with an injectable medication. All forms of the disorder can be cured through the transplantation of bone marrow if a matching donor can be identified. And finally, SCID may be treated through human gene therapy in which a normal copy of the defective gene may be inserted into the patient's own blood-forming cells. The first gene therapy experiments in history were carried out at NIH in 1990 in two young
Ohio girls with SCID. The patients are alive, continue to do well and are involved in ongoing research at NHGRI.

The sooner a child is diagnosed, the sooner treatment can begin and the more likely it is to be effective.

"Too many babies are diagnosed too late," said Jennifer M. Puck, M.D., chief of NHGRI's Genetics and Molecular Biology Branch. "And some babies develop fatal infections before their condition is recognized. Recent research shows that bone marrow transplants in the first three months of life work better than transplants at a later age. So it is critical to identify affected
children immediately after birth. Since the babies lack overt clinical symptoms for some time, a molecular test is a good approach."

The newly developed screening tool exploits a detailed understanding of the maturation of T cells, one of the essential types of white blood cells that make up the immune system. Without a sufficient number of normal T cells, the immune system doesn't work, just as when the AIDS virus wipes out the same population of immune cells. During normal development, an individual T cell rearranges the gene that produces a so-called antigen receptor on the surface of the cell. The antigen receptor allows the T cell to identify an infectious agent and launch a defensive attack to kill the invader.

While rearranging the receptor gene, the maturing T cell produces a bit of leftover genetic material that forms a ring structure within the cell. Using a quantitative laboratory technique that measures the number of these rings within a blood sample, Dr. Puck's group was able to differentiate normal infants from those with SCID. In dried blood samples from healthy babies, the team was able to detect an average of 1,000 of these genetic rings; children with SCID had 30 or fewer. "That's a big difference," she said.

The development of the new test is described in the February issue of "The Journal of Allergy and Clinical Immunology". Although the availability of the test raises the question of whether states should begin using it on all newborns, Dr. Puck concluded that the new test is not quite ready for widespread use. It must first be validated.

"Our false positive rate was about 1.5 percent, which is too high to be practical for screening," Dr. Puck said. A baby with a positive test would need to be evaluated to see if he or she was actually sick; a false positive rate of 1.5 percent would mean three out of every 200 newborns would need further testing. "That would be a lot of babies going back to the doctor and a lot of worried parents. We are now working on ways to decrease the number of false positives."

To validate the test, Dr. Puck's group is collaborating with the newborn screening laboratory of the Maryland Department of Health and Mental Hygiene in
Baltimore. The Maryland state lab is supplying some 5,000 blood samples already collected on newborns for the NHGRI lab to test. Although these samples are likely to be normal, they will be used to refine the laboratory procedures and establish quality control. Once the high-throughput screening approach has been validated with this large set of existing samples from Maryland, the NHGRI lab plans to begin prospectively testing newborns from the state. Other state testing laboratories also have expressed interest in participating in the prospective studies.

Although considered a rare disease, SCID is best known to the public from media accounts -- and a made-for-TV movie starring John Travolta – about David, the Bubble Boy, a
Texas boy who spent his entire life in a germ-free environment, ultimately dying after a failed bone marrow transplant in early adolescence. No one knows exactly how many babies are born with SCID. Current estimates suggest that 1 in every 50,000 to 100,000 births may be affected, indicating SCID may be about as common as some of the inherited illnesses for which states currently screen all newborns. Experts suspect that many children with SCID die from infections before being diagnosed, so
the true incidence of the disease may be even higher. Newborn screening may
reveal the true incidence.

Because the new test is still experimental, it is not available to the general public and the cost has yet to be determined.

NHGRI is one of the 27 institutes and centers at the National Institutes of Health, which is an agency of the Department of Health and Human Services. The NHGRI Division of Intramural Research develops and implements technology to understand, diagnose and treat genomic and genetic diseases. Additional information about NHGRI can be found at www.genome.gov.


This NIH News Release is available online at: http://www.nih.gov/news/pr/feb2005/nhgri-22.php.

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IMPORTANT INFORMATION ABOUT THE EDUCATION OF EXCEPTIONAL CHILDREN

Antidepressants for Children Must Have Warnings: FDA Advisers

Antidepressants prescribed to children should carry a clearly stated warning that they can sometimes trigger suicidal thoughts or actions in pediatric patients.
That was the unanimous recommendation handed up Tuesday by members of two U.S. Food and Drug Administration panels convened jointly to examine the risks of giving medications known as selective serotonin reuptake inhibitors to children, according to wire service reports. http://www.healthcentral.com/news/NewsFullText.cfm?id=521229 and http://aolsvc.health.webmd.aol.com/content/article/94/102656.php

The Characteristics, Experiences, and Outcomes of Youth with Emotional Disturbances

The National Longitudinal Transition Study (NLTS) provided the first national picture of the lives of youth with disabilities in their high school years and in their transition to early adulthood. NLTS analyses from the early 1990s showed tremendous variation across disability categories in the experiences and achievements of youth, yet the outcomes of youth in the primary disability category of emotional disturbance (ED) were found to be “particularly troubling” (Wagner et al., 1991, p. 11:3).

The National Longitudinal Transition Study-2 (NLTS2) provides another opportunity to take a look at youth with ED. How have their experiences changed in the years since NLTS? This Data Brief takes a fresh look at selected characteristics of youth with ED and their households that distinguish them from other youth with disabilities and/or from youth in the general population. It also describes aspects of their school histories and their current school programs and experiences, as well as indicators of their academic performance and social adjustment at school. Finally, the activities of youth with ED outside of school are highlighted.
http://www.ncset.org/publications/viewdesc.asp?id=1687

Home Schooling

The estimated number of K-12 children being educated at home in the U.S. increased by 29 percent between 1999 and 2003, growing to 1.1 million students and 2.2 percent of the school-aged population, according to a new study by the National Center for Education Statistics. http://www.christiantimes.com/Articles/Articles%20Sep04/Art_Sep04_05.php

Serving Youth with Hidden Disabilities

People with non-apparent disabilities, which include specific learning disabilities, Attention Deficit/Hyperactivity Disorder, Traumatic Brain Injuries, emotional disorders, and chronic illnesses, make up the largest numbers of individuals with disabilities. Because of the nature of hidden disabilities, identification and the assignment of needed interventions and supports are more difficult. Parents and professionals often have an inadequate understanding of the nature of hidden disabilities or useful accommodations. Most importantly, youth with hidden disabilities are less likely than others to disclose their disability because they want to avoid being stigmatized or being labeled. Consequently, youth with these disabilities may enter educational, training, and employment programs without communicating their disability and need for accommodations or special assistance.

According to the U.S. Department of Education Office of Special Education Programs, of the approximately 6 million children in special education programs in the United States, almost one half, or 2.9 million, have learning disabilities. (There are several studies that suggest workforce development and particularly programs focused on literacy probably include a substantial proportion of participants (ranging from 50% to 80%) with learning disabilities). Therefore, for this population alone, it is important that workforce development programs and youth service practitioners have a working knowledge of how to:

identify and screen for hidden disabilities;
assure that appropriate formal diagnosis occurs, if needed; and
ensure that appropriate accommodations and support services are provided in the career preparation process.

The National Collaborative on Workforce and Disability for Youth's recently released Career Planning Begins With Assessment: A Guide for Professionals Serving Youth with Educational & Career Development Challenges discusses in detail specific learning disabilities (SLD). More information can be found at http://www.ncwd-youth.info/resources_&_Publications/assessment.html.

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BULLYING - IS IT PART OF GROWING UP OR A PART OF SCHOOL VIOLENCE?

It hasn't been much studied in the United States, it isn't part of most teacher training curricula, and many educators think there's little they can do to stop it. But bullying at school is getting new attention, as researchers find mental health implications in the fact that as many as one-third of students say they have either bullied someone or been the target of bullying. Researchers also consider it important that some 70 percent of the young persons who committed extreme acts of school violence such as shootings were later found to have been either victims or perpetrators of bullying in their schools.


http://www.healthinschools.org/focus/2004/no2.php

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IMPORTANT INFORMATION ABOUT EXCEPTIONAL TEENAGERS

Combination Treatment Most Effective for Adolescents with Depression

A clinical trial of 439 adolescents with major depression has found a combination of medication and psychotherapy to be the most effective treatment. Funded by the NIH's National Institute of Mental Health (NIMH), the study compared cognitive-behavioral therapy (CBT) with fluoxetine, currently the only antidepressant approved by the U.S. Food and Drug Administration for use in children and adolescents. John March, M.D., Duke University, and colleagues, report on findings of the multi-site trial in the August 18, 2004, "Journal of the American Medical Association" (JAMA).

The results of the first 12 weeks of the Treatment for Adolescents with Depression Study (TADS), conducted at 13 sites nationwide, show that 71 percent responded to the combination of fluoxetine and CBT. The other three treatment groups, of participants between the ages of 12 and 17, also showed improvement, with a 60.6 percent response to fluoxetine-only treatment, and 43.2 percent response from those receiving only CBT. The response rate was 34.8 percent for a group that received a placebo. The difference in response rates for the latter two treatment groups was not statistically significant.

The $17 million study is the first large, federally funded study using an antidepressant medication to treat adolescents suffering with moderate to severe depression. TADS was conducted between the spring of the year 2000 and the summer of 2003.

Clinically significant suicidal thinking, which was present in 29 percent of the volunteers at the beginning of the study, improved significantly in all four treatment groups, with those receiving medication and therapy showing the greatest reduction.

For more information, visit http://www.nimh.nih.gov/press/prtads.cfm

Young Drivers with Attention-Deficit/Hyperactivity Disorder

The statistics regarding teenage drivers with Attention-Deficit/Hyperactivity Disorder (AD/HD) may make parents of such a driver nervous, especially when that driver is inexperienced. Don't panic yet! There are expert resources available. SchwabLearning.com has recently posted a series of articles that address young drivers with AD/HD:

Teaching Kids with LD to Drive: A Complex Family Matter
www.schwablearning.org/articles.asp?r=852

Teen Drivers with AD/HD: Realities and Risk Factors
www.schwablearning.org/articles.asp?r=855

When Teens with AD/HD are Learning to Drive: Parent Strategies
www.schwablearning.org/articles.asp?r=856

Keeping Licensed Teenage Drivers With AD/HD Safe: Parent Strategies
www.schwablearning.org/articles.asp?r=857

There are driving schools with instructors trained to work the special needs children, including those with AD/HD. Some schools also provide specially equipped vehicles for drivers with physical disabilities.

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NEED A PUBLISHER OF A BOOK SPECIFIC TO YOUR CHILD’S NEEDS?HERE ARE DISABILITY PUBLSISHERS FOR YOU TO KNOW

Academic Therapy Publications - www.academictherapy.com/
This Web site offers books for all professionals working with children who have special needs. In addition, this publisher offers High Noon Books, which are written for high interest/low level readers. That is, students who are reading below their age level, but prefer more age appropriate subject matter.

ADD Warehouse - www.addwarehouse.com
Developmental disorders, including attention deficit/hyperactivity disorder are this publisher’s specialty. Browse through the books by category—kids, adults, parents, and teachers. Don’t miss the videos. Some products are also available in Spanish.

Albert Whitman and Company - www.awhitmanco.com
This publisher specializes in children’s books and features stories for kids on asthma, Down syndrome, learning disabilities and more.

Allyn & Bacon/Longman - www.ablongman.com/
This publisher produces tons of materials on a variety of disability-related topics for teachers, teachers-in-training, and parents. Search by keyword to pinpoint what you are looking for.

Brookline Books - www.brooklinebooks.com
This publisher offers three categories of disability books: assistive technology, general disability, and self-advocacy. The materials are for teachers, families, and young adults with disabilities.

Butte Publications Resources- www.buttepublications.com/
At this publisher’s site, you’ll find educational materials for students who are deaf or hard of hearing, their parents, teachers, and other professionals in the field.

Canter and Associates - www.canter.net
Click on “Canter Store” when you get to this Web site, and you’ll find a wealth of information. Products are broken down into categories for parents, teachers, and administrators. Or, you can search by keyword.

Centering Corporation - www.centering.org
This organization specializes in publications about grief and overcoming loss.

Childswork/Childsplay - www.childswork.com
This publisher offers over 450 resources to address the social and emotional needs of children and adolescents. Their web site has areas dedicated to disorders, research issues, teachers, parents, and mental health professionals.

Compact Clinicals - www.compactclinicals.com
This publisher offers concise overviews on attention-deficit/hyperactivity disorder, aggressive and defiant behavior, depression, obsessive compulsive disorder, and other conditions.

Corwin Press, Inc. - www.corwinpress.com
Educators, administrators, and counselors, this publisher has products for you! Check out the books and journals listed on the Web site. Request a free catalog.

Delmar Learning/Thomson Learning - www.earlychilded.delmar.com/
This Web site features early childhood education products. Browse through the categories of books to find books on assessment, inclusion, and much more.

Educators Publishing Service - www.epsbooks.com/#XYZ
At this site you will find books and workbooks for students from kindergarten through high school as well as students who are home-schooled. This publisher focuses on teacher-developed literacy products.

Free Spirit Publishing - www.freespirit.com
This publisher offers books and other learning materials on learning differences (or learning disabilities) for kids, teens, teachers, and parents. Browse by category to find what you are looking for.

Future Horizons - www.futurehorizons-autism.com
If you are looking for products on autism, PDD, or Asperger’s, this is the site to visit. They offer books, videos, and a magazine, as well as medical resources, and conference information.

Gallaudet University Press - http://gupress.gallaudet.edu
This site is a one-stop shop for books on deaf and hard of hearing topics, including American Sign Language, deaf culture, parenting, special education, and more.

GSI Publications - www.gsi-add.com
This site is chock-full of ADHD products for parents, teachers, children with ADHD, and their siblings. Some materials are also available in Spanish.

Guilford Press - www.guilford.com
Click on “ADHD Resources” to find lots of books and videos on Attention Deficit/Hyperactivity Disorder. Also check the “Education” category for other disability-related resources. Some materials are also available in Spanish.

Heinle & Heinle/Thomson Learning - www.heinle.com
This publisher specializes in ESL and ELT (English as a Second Language, and English Language Teaching) materials. Teachers and students can find products tailored to them.

Jason & Nordic Publishers - www.jasonandnordic.com
This publisher offers an awesome series of children’s books about what it’s like to have a disability such as cerebral palsy, Down syndrome, or deafness. Some books are also available in an audio version.

John Wiley & Sons - www.wiley.com
Check out the “Special Education” category (within the “Education” section) to find over 20 different books for teachers on teaching special-needs kids.

L&A Publishing - www.lapublishing.com
This publisher offers tons of reader-friendly information on brain injury in children and adults. Check out the resources for survivors, parents, kids, siblings, teachers, advocates, and counselors.

LRP Publications - www.lrp.com
LRP offers lots of legal information regarding special education. On their site, you can sign up for free Special Ed e-news—short e-mail newsletters giving you significant case decisions, important developments in the special education community, and updates on LRP's new products. Also, visit their special education store to find resources on IDEA, inclusion and more.

Lawrence Erlbaum Associates - www.erlbaum.com
Education professionals will find over 50 resources of interest at this publisher’s site, when they search by “special education.” Topics covered include learning disabilities, multiculturalism, and educational placement.

Love Publishing - www.lovepublishing.com
Just click on “special education” at this publisher’s Web site to find a categorical list of special-needs resources, including behavior, early intervention, special education law, and much more.

Magination Press - www.maginationpress.com
This publisher features special books for children’s special concerns. Written for ages four through 18, these books range in topic from autism, and attention deficit/hyperactivity disorder, to medical problems, and self-esteem. A great site for hard-to-find children books.

Master Teacher - www.masterteacher.com
This publisher has great special education resources for teachers, principals, administrators, and paraeducators (also called teacher aides).

Nolo Press - www.nolo.com
This publisher offers easy-to-read legal information. Search by “special education” to find the products that would be of interest to you.

Open Minds - www.openmindsinc.com
This publisher focuses on children’s literature that celebrates differences and models inclusion. Materials are available in series sets that can easily used in the classroom—fiction books, student journals, and parent and teacher guides.

Paul H. Brookes - www.brookespublishing.com
This publisher is a gold mine of special needs materials, useful particularly to professionals with some parent materials scattered throughout. They publish research-based resources in developmental and learning disabilities, early intervention, child development, language and literacy, special and inclusive education, community supports and services, mental health, and behavior.

Peachtree Publications - www.peachtree-online.com
Check out the children and young adult’s section of this publisher’s Web site. You’ll find great children’s books covering topics such as deafness, getting a prosthetic hand, and using a wheelchair.

Peytral Publications - www.peytral.com
This publisher has a great bunch of publications for parents, teachers, paraeducators and more on various disability and special education materials.

Prentice Hall/Pearson Education - http://vig.prenhall.com
Special educators-in-training will find tons of resources at this publisher’s site. Select “special education” under the Discipline Finder and you’ll get over 20 subcategories of special education topics, including behavior management, families in special education, special education law, and more.

Pro-Ed, Inc. - www.proedinc.com
Visit this site to find out about the resources this publisher provides on speech, language, and hearing, psychology and counseling, special education, early childhood intervention, and occupational and physical therapy.

Psy-Ed Corporation - www.exceptionalparent.com
Psy-Ed Corporation publishes Exceptional Parent, a magazine published primarily for parents of children with special needs.

Sage Publications - www.sagepub.com
This publisher offers a wide range of publications geared toward teachers and teachers-in-training. Try searching by “special education” or “disability” to find books suited to your interests.

Scholastic, Inc. - www.scholastic.com/index.asp
This site has numerous disability-related materials. Search by “disabilities” or “special needs” and you’ll find tons of books, articles, and other products.

Sensory Resources - www.sensoryresources.com/
Parents, teachers, and therapists will love the hard-to-find resources on sensory integration and sensory processing that are available through this site. Children with autism spectrum disorders often have sensory issues.

Sopris West - www.sopriswest.com
Education professionals and parents! This publisher specializes in practical products aimed at helping students with their behavior, social skills, and academics. You’ll find books, journals, curricula and more on a variety of topics, including behavior management, inclusion, reading, and social skills. Search the online catalog, or request a free publications catalog.

Special Kids - www.specialkids1.com
Special Kids produces educational videotapes and picture books aimed at children who have autism, Down syndrome, PDD, Asperger’s Syndrome, or learning disabilities. This site also has tons of links to other good resources.

Woodbine House - www.woodbinehouse.com/
You’ll find a real treasure chest of special needs products here! This publishers offers “The Special-Needs Collection”--sixty books on disabilities and related topics for parents, children, and professionals.

Back-to-school Resources for Parents, Students, and PTAs

To make getting ready for school easier for parents, students, and PTA leaders, the National PTA (Parent-Teacher Association) has compiled resources and information in an expanded Web site. Parents can find articles on helping with homework, promoting good test-taking skills, keeping kids healthy, enhancing parent-teacher communication, and much more. PTA leaders planning back-to-school events will find tips, timelines, fliers, posters, and membership materials to get the 2004-2005 school year off to a great start. For complete details, visit: http://www.pta.org/parentinvolvement/bts/index.asp

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LEGAL ISSUES AFFECTING PARENTS OF

CHILDREN WITH DISABILTIES

Individuals with Disabilities Education Improvement Act (IDEA 2004) Update

On December 3, 2004, President Bush signed into law the Individuals with Disabilities Education Improvement Act of 2004 (IDEA 2004), Public Law 108-446. The NationalDisseminationCenter for Children (NICHCY) and Youth with Disabilities developed a synopsis of websites that we at NAPCSE have made available to you. NAPCSE thanks NICHCY for providing us with this information on the latest updates of IDEA 2004

Read the President's remarks at:


www.whitehouse.gov/news/releases/2004/12/20041203-6.php


Summary of the 2004 IDEA

Courtesy of the National Down Syndrome Congress (NDSC), this summary looks at the IEP process, due process, and discipline.

www.ndsccenter.org/events.asp#summary


Summary of the new IDEA provisions


Courtesy of NAPAS, the National Association of Protection and Advocacy Systems, Inc. www.OCLB.info/pdf/NAPAS_IDEA2004_Summary.pdf


Summary of the new law


Courtesy of the National Committee of Parents and Advocates Organized to Protect IDEA. www.nichcy.org/reauth/2004IDEASUMMARY-12.04.doc


Let's go section by section


Courtesy of the Council of Parent Attorneys and Advocates (COPAA), take a look at the Comparison of H.R. 1350 (Individuals with Disabilities Education Improvement Act of 2004) and IDEA ‘97. You can download the entire comparison in PDF, or look at individual comparisons of Parts A, B, C, or D of the law and the new provisions the National Center for Special Education Research. www.copaa.net/content/IDEA97-04COMP.php


A side-by-side analysis of transition requirements


Courtesy of NCSET, the National Center on Secondary Education and Transition. The side-by-side analysis identifies major changes between IDEA 1997 and H.R. 1350 (IDEA 2004) concerning transition services for youth with disabilities. ncset.org/publications/related/ideatransition.asp
And 200 pages from NASDSE.


NASDSE, the National Association of State Directors of Special Education, offers a 200-page side-by-side that compares current law to the amended law signed by President Bush on December 3rd. Individual copies are $15 each; bulk orders of 100 copies or more receive a 15% discount. To order your copy, send a check or purchase order to NASDSE, 1800 Diagonal Road., Suite 320, Alexandria, VA 22314, Attention: C. Burgman. The document is not available in electronic format. www.nasdse.org/

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What are the Major Changes Between IDEA 1997 and IDEA 2004?

The National Center on Secondary Education and Transition News has identified the major changes between IDEA 1997 and IDEA 2004 concerning transition services and have attached a side-by-side visualization of the changes. The document is also available on its web site at http://ncset.org/publications/related/ideatransition.asp.

Individuals with Disabilities Education Improvement Act and No Child Left Behind

Last month, President Bush signed into law a bill revamping the Individuals with Disabilities Education Act (IDEA). The new legislation builds on the reforms of the No Child Left Behind Act (NCLB), including parental choice and academic results for students, while addressing issues of paperwork reduction and litigation to ensure a quality education for over six million children with disabilities.


Under NCLB, states and school districts must account for the academic progress of all students with disabilities, and new provisions released last year allow greater flexibility for students with the most significant cognitive disabilities. In addition, in schools that have been identified as being in need of improvement, students with disabilities now have the same access to NCLB benefits as all other students. They are eligible to either transfer to a better performing school or receive supplemental educational services such as tutoring.


Following are the key changes in the nation's special education law:


•Expand options for parents. Parents, along with the local education agency, may agree to make changes to a student's individualized education program (IEP) without having to hold a formal IEP meeting. They may instead develop a written document for an amendment.
•Prevent requiring medication for education services. Schools cannot force parents to medicate their children as a condition of attending school, receiving an evaluation or receiving services.
•Extend the timeline for teacher certification. New special education teachers who teach multiple subjects exclusively to students with disabilities and who are deemed "highly qualified" in math, language arts or science will have two years after their employment date to demonstrate competency in the other core academic subjects they teach.
•Reduce the paperwork burden on teachers. A 15-state pilot program will allow states and school districts to offer parents the option of a multi-year IEP, not to exceed three years, as opposed to a yearly plan. Another pilot program will allow the
U.S. secretary of education to waive certain paperwork requirements for up to 15 states.
•Reduce litigation. Prior to a due process hearing, the local education agency must hold a resolution session with parents and IEP Team members within 15 days of receiving notice of a parent's complaint. In addition, a request for a hearing must be filed within two years from the date of the alleged violation.
•Reduce misidentification of non-disabled children. School districts can address the problem of children being erroneously placed in special education by using a portion of their IDEA funding to provide intervention services to children who have not yet been identified as needing special education but need additional academic or behavioral support.
For more information on the new special education law, visit the Web site of the House Committee on Education and the Workforce at http://edworkforce.house.gov/issues/108th/education/idea/idea.php.



Summary of IDEA 2004--From the National Collaborative on Workforce and Disability

After three years of intense debate and compromise, America’s federal statute governing special education has been revised, enacted and, for the most part, will take effect July 2005. Congress finished work on the revisions to the Individuals with Disabilities Education Act (IDEA) in late November, 2004, and President Bush signed the legislation, known as the Individuals with Disabilities Education Improvement Act, on December 3, 2004.

A piece of civil rights legislation, the IDEA guarantees students with disabilities a free appropriate public education in the least restrictive environment and authorizes appropriations of billions of dollars in funding to states and school districts to assist them in providing special education and related services.

The revisions of IDEA contained in the new law, Public Law 108-446, build on and more closely align IDEA with the No Child Left Behind Act. They also modify important requirements around individualized student planning, transition, litigation, and due process protections, monitoring and enforcement, and federal funding. Below is a summary of some of the major provisions in the new law.

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No Child Left Behind

The new law contains provisions aimed at strengthening how special education students’ academic progress is measured.The law promotes the use of universal design principles in both the delivery of instruction and the use of technology. The new law also requires quarterly reports to parents on their child’s progress toward meeting IEP goals, and how that progress is being measured.

Under the new law, alternate assessment scores are required to be counted when determining performance of a school district and state. In addition, the law requires individualized education programs to emphasize academic performance. Parents will be able to choose supplemental educational services, such as tutoring, for their children with disabilities when the student’s schools are in need of improvement under NCLB.

Special educators must prove competency in most core academic subjects they teach, unless they teach students with significant cognitive disabilities. The new law requires that special education teachers be certified as “highly qualified” by the end of the 2005-06 school year, with the same definition of the term and deadline required for general education teachers under the NCLB (PL 107-110). The “highly qualified” teacher provisions take effect immediately as schools prepare to meet the NCLB requirement.

Additionally, paraprofessionals are now required to meet certain state-established personnel standards.

Individualized Education Programs

The new law contains several important changes to the Individualized Education Program (IEP) requirements of IDEA.

Short-term goals no longer have to be part of the IEP except for students with significant disabilities. No short-term objectives are required for students who take regular assessments or an alternate assessment on grade level. For students taking tests based on alternate achievement standards, IEP short-term objectives are still required.

If changes to a students’ IEP are necessary after the annual IEP meeting for a school year, the parent and the school district may agree not to convene an IEP meeting to make the changes, but instead, may develop a written document to amend or modify the current IEP. Upon request, a parent is to be provided a revised copy of the IEP with the amendments incorporated.

A member of the IEP team is not required to attend all or part of the IEP meeting if, in writing, the parent, and the school agree that the team member’s attendance is not necessary.

In the case of a student with an IEP who transfers school districts within the same academic year within the same state, the new law requires the school district to provide the child with free appropriate public education (FAPE), including services comparable to those described in the previous IEP, in consultation with the parents until the school district adopts the previous IEP or develops, adopts, and implements a new IEP. For students transferring from one state to the other, the same rule holds but only until the school district conducts an evaluation, and develops a new IEP.

The new law creates an opportunity for up to 15 states to test the option of establishing a three-year IEP program for students of all ages. Parents in those states would still get the option to have a one-year IEP. This compromise will allow the selected states to receive waivers for certain federal and state paperwork requirements as long as they do not violate civil rights and procedural safeguards. States wishing to participate in the program will compete for the 15 slots for the paperwork reduction pilot programs. The Secretary of Education will announce the competitive opportunity, evaluate the proposals, and select the 15 states.

Transition

The new law contains the changes in the transition provisions.IDEA has been amended to clarify that one of the primary purposes of the law is to ensure a free appropriate public education designed to meet each student’s unique needs and to “prepare them for further education, employment and independent living.”

The revisions to IDEA eliminate the references to transition activities beginning at age 14; now, all transition requirements are to be followed not later than the first IEP to be in effect when the student turns 16 years old.

The definition of “transition services” has been changed to emphasize that the services must be designed “within a results-oriented process,” which is “focused on improving the academic and functional achievement” of the student. “Vocational education” has been added to the list of potential services and the student’s “strengths” are to be taken into account as well as his or her preferences and interests when considering the student’s transition needs.

Schools are required to set clear and specific transition goals beyond secondary school. The student’s IEP is to include “appropriate measurable postsecondary goals based on age appropriate transition assessments” and describe the transition services, “including courses of study,” needed to reach his or her goals.

Schools are required to provide graduating high school students with disabilities a summary of their accomplishments and transition needs as they leave school.

At the end of the Congressional debate, one major transition-related provision was dropped from the bill that would have amended the Workforce Investment Act’s (WIA) Vocational Rehabilitation Act to authorize a very detailed transition program for the vocational rehabilitation system. Elimination of these transition provisions at the last minute of negotiations over IDEA sets the stage for a more systemic approach to transition during the Congressional deliberations on the yet-to-be-completed reauthorization of the Workforce Investment Act.

Overidentification

The new law includes several provisions intended to reduce the over identification of children as disabled, including minority children.

Administrators must use new approaches to prevent over-identification or misidentification of students with disabilities. The new law permits all school districts to use up to 15 percent of their IDEA funds for so-called “pre-referral services” for children who may have problems in specific skills, such as reading, before they are identified as disabled and needing special education. It would require school districts with significant over identification of minority students as disabled to operate pre-referral programs.

As it relates to determining whether a student has a specific learning disability, the new law says that “…a local educational agency shall not be required to take into consideration whether a child has a severe discrepancy between achievement and intellectual ability in oral expression, listening comprehension, written expression, basic reading skill, reading comprehension, mathematical calculation, or mathematical reasoning.” It goes on to say that “in determining whether a child has a specific learning disability, a local educational agency may use a process that determines if the child responds to scientific, research-based interventions” as a part of the required evaluation procedures.

Student Discipline

Probably the most controversial part of the IDEA reauthorization process, there are a number of significant changes to the discipline protections enacted in the IDEA amendments of 1997.

School personnel now have the authority to consider, on a “case by case basis,” unique circumstances when determining whether to order a change in placement for a student with a disability who violated a code of student conduct.

The length of time school personnel may remove a student to an interim alternative setting, without a hearing officer, has been changed from 45 days to 45 school days.

In addition, school personnel may now remove a student who “has inflicted serious bodily injury upon another person while at school, on school premises, or at a school function” to such an interim placement without a hearing officer ruling.

Thecriteria to be used in disciplinary action for determining whether a behavior is a manifestation of a student's disability is:1) whether the conduct in question is caused by, or had a direct and substantial relationship to, the student's disability; or 2) whether the conduct in question was the direct result of the school district's failure to implement the student's IEP."

Due Process and Litigation

There are several important changes to the due process rights of families.

The new law allows complaints to be submitted no more than two years from the date a parent or agency knew or should have known about the issue that is the subject of the complaint, or within the timeline the state requires.

It also requires both parties submit a due process complaint notice before accessing a due process hearing. The law now allows for mediation to be requested prior to the filing of a complaint and strengthens the provisions for developing a written binding confidential agreement. And, the new law creates a new “resolution session” process as a means of dispute resolution.

The law maintains the right of parents and families to sue a district or state and collect attorney’s fees, but also allows a school district to collect reasonable attorney’s fees in egregious cases. A party bringing a civil action has 90 days from the date of the hearing officer’s decision to bring a civil action, or the time period allowed by the state law.

Monitoring and Compliance

States and the U.S. Department of Education (ED) must work together closely to enforce the law in a systematic way. The new law requires states to develop performance plans with measurable targets on such indicators as free appropriate public education (FAPE) and least restrictive environment (LRE). The new law specifically requires states to identify enforcement targets such as minority representation in special education and issues related to a FAPE. It also provides a structured timeline for ED to help states comply with the law, and increasingly severe sanctions if states continue to fail to do so. The new law sets up specific timelines for ED to react to states’ noncompliance. While the sanctions for noncompliance focus on technical assistance, the secretary does have the authority to withhold funding whether partially or entirely.

The Secretary of Education will review the state performance plan annually and determine whether a state is in compliance, or needs “assistance,” “Intervention” or “substantial Intervention” in implementing the law. After two years of noncompliance, ED will continue to offer assistance through other federal agencies, professional development, and other resources from experts.

After three consecutive years of noncompliance, the Secretary of Education could require the state to develop a corrective action plan, enter into a compliance agreement, withhold partial or future funding or refer the matter to the Justice Department for appropriate enforcement action.

Funding

Although the new law stops short of guaranteeing that the federal government will pay 40 percent of the costs of special education, it authorizes significant additional spending that, if appropriated, will bring the federal contribution to special education to the 40 percent mark by 2011. Congress opted to address the funding issue through this “glide path” rather than making special education funding an entitlement or mandatory.

The new law also makes some changes to the funding formula. It provides formulas for determining the maximum amount a state can receive based on numerous factors, including the number of children receiving special education and related services aged 3-5 and 6-21; and average per pupil expenditure in the United States. It also provides a formula for allocating any increase in appropriations over the previous fiscal year, based on a state’s relative population of children aged 3-21 with disabilities and based on the relative population of children with disabilities who are living in poverty. No state’s allocation can be less than the previous year’s allocation.

The new law establishes risk pools for local education agencies to help pay for the education of high-need students and the unexpected enrollment of students with disabilities. Under this provision, states have the option to receive 10 percent of the amount of funds the state reserves for state-level activities. Any funds that a state does not use for the risk pool will be allocated to the local educational agencies in the next fiscal year. The law caps the amount of funds that may be used for administration at the fiscal year 2004 level and allows states to retain an increased potion for other required state level activities. This portion would be capped after two years.

The new law also authorizes local school districts to reduce local expenditures on certain programs below prior year’s levels, up to an amount equivalent to 50 percent of new federal special education funding each year, on a cumulative basis, as long as an equivalent amount of local funds is used for activities authorized under the Elementary and Secondary Education Act.

Except for some provisions related to “highly qualified” teachers mentioned earlier, the new law will be effective on July 1, 2005 and the U.S. Department of Education now begins the arduous process of developing implementing regulations.

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AMERICANS WITH DISABILITIES ACT (ADA)

The American’s with Disabilities Act- Job Applicants and Employees with Intellectual Disabilities

The Americans with Disabilities Act (ADA) is a federal law that prohibits discrimination on the basis of disability. Title I of the ADA makes it unlawful for any employer to discriminate against a qualified applicant or employee because of a disability in any aspect of employment. The ADA covers employers with 15 or more employees, including state and local governments. Section 501 of the Rehabilitation Act provides the same protections for federal government employees and applicants. In addition, most states have their own laws prohibiting employment discrimination on the basis of disability. Some of these state laws may apply to smaller employers and provide protections in addition to those available under the ADA.

This guide is the third in a series of fact sheets addressing particular disabilities in the workplace. It explains how the ADA might apply to job applicants and employees with intellectual disabilities. To read the entire guide, visit: http://www.eeoc.gov/facts/intellectual_disabilities.php

New Fact Sheet on Employment Rights of People with Intellectual Disabilities

The U.S. Equal Employment Opportunity Commission (EEOC) has released a fact sheet on the application of the Americans with Disabilities Act (ADA) to persons with intellectual disabilities in the workplace. The new publication is available at http://www.eeoc.gov/.


The term "intellectual disability" describes the condition once commonly referred to as "mental retardation." Approximately one percent of the
United States ' population, an estimated 2.5 million people, has an intellectual disability. Estimates indicate that only 31 percent of individuals with intellectual disabilities are employed, although many more want to work.

Righting the Americans with Disabilities Act

The National Council on Disability (NCD) has researched the implementation, effectiveness, and impact of the Americans with Disabilities Act (ADA). NCD has conducted an in-depth analysis of the Supreme Court's interpretations of the ADA and has determined that several of them depart from the core principles and objectives of the ADA; and it provides an analysis of the problematic rulings, describes the resulting impact on people with disabilities, and offers legislative proposals designed to restore the ADA to its original intent. Available in PDF (800 KB, 157 pages). To learn more, visit:
http://www.ncd.gov/newsroom/publications/2004/pdf/righting_ada.pdf

U.S. Department of Labor Office of Disability Employment Policy--Dispelling Myths about the Americans with Disabilities Act

Fact: The ADA has resulted in a surprisingly small number of lawsuits-only about 650 nationwide in five years. That is tiny compared to 6 million businesses, 666,000 public and private employers, and 80,000 units of state and local governments that must comply.

Assumption: The ADA's definition of disability is broad and vague and has resulted in "bizarre and arcane" discrimination claims that are wasting the time of the EEOC and the courts.

Fact: As with any new statute, there is a period during which employers and employees learn about their rights and obligations under the law. While individuals have the right to file charges, not all charges are meritorious. The job of the EEOC investigator is to separate the wheat from the chaff. Further, the flexibility provided by the ADA definition of "disability" means that there will be individuals who bring claims for conditions that do not satisfy the statutory standards, and the claim will be dismissed.

Assumption: The ADA forces business and government to spend lots of money hiring unqualified people with disabilities.

Fact: To be protected by the ADA an individual must be qualified. No unqualified job applicant or employee with a disability can claim employment discrimination under the ADA. Employees or job applicants must meet all the necessary requirements of the job and perform the essential functions of the job with or without reasonable accommodation. No accommodation must be provided if it would result in an undue hardship on the employer.

Assumption: The ADA, along with other laws such as the FMLA and Workers' Compensation, are squeezing out small businesses that cannot afford to hire human resource specialists to advise them regarding the complexities of these laws.

Fact: Truly small businesses, those with fewer than 15 employees, are not covered by the ADA. (The FMLA only applies to employers with 50 or more employees.) For employers who are covered, the ADA provides an undue hardship defense for reasonable accommodations that are unduly costly or burdensome. Smaller employers can more easily establish undue hardship because they have fewer resources.

Assumption: The ADA is being misused by people alleging mental and neurological impairments.

Fact: The ADA covers individuals with physical or mental impairments that substantially limit major life activities because individuals with such impairments have traditionally been subjected to pervasive employment discrimination. Just as the ADA excludes people with temporary physical problems, so does it exclude people with mild or short-term mental health problems. Neurological impairments are conditions or diseases involving the nervous system, including the brain, spinal cord, ganglia, nerves, and nerve centers. ADA charges indicate that there is significant discrimination against persons with neurological impairments. Psychiatric impairments involve a biological, social, or psychological dysfunction. Individuals with psychiatric disabilities have traditionally been subjected to discrimination, not because they are unable to successfully perform job duties, but because of myths, fears, and stereotypes associated with such impairments.

Assumption: The ADA is rigid and requires businesses to spend lots of money to make their existing facilities accessible.

Fact: The ADA is based on common sense. The law recognizes that altering existing structures is more costly than making new construction accessible. The law only requires that public accommodations (e.g., stores, banks, hotels, and restaurants) remove architectural barriers in existing facilities when it is "readily achievable" (i.e., it can be done "without much difficulty or expense"). Inexpensive, easy steps that can be taken include ramping one step, installing a bathroom grab bar, lowering a paper towel dispenser, rearranging furniture, installing offset hinges to widen a doorway, or painting new lines to create an accessible parking space.

Assumption: ADA requires that sign language interpreters be used in all situations involving persons who are deaf.

Fact: The ADA only requires that effective communication not exclude people with disabilities-which in many situations means providing written materials or exchanging notes. The law does not require any measure that would cause an undue financial or administrative hardship.

Assumption: The ADA requires extensive renovations of all state and local government buildings to make them accessible.

Fact: The ADA requires all government programs, not all government buildings, to be accessible. "Program accessibility" is a very flexible requirement and does not require a local government to do anything that would result in an undue financial or administrative burden. Local governments have been subject to this requirement for many years under Title 5 of the Rehabilitation Act of 1973. Not every building, nor each part of every building needs to be accessible. Structural modifications are required only when there is no alternative available for providing program access. Let's say a town library has an inaccessible second floor. No elevator is needed if it provides "program accessibility" for persons using wheelchairs by having staff retrieve books.

Assumption: Everyone claims to be covered under the ADA.

Fact: To be protected under the law, a person must have an impairment that substantially limits a major life activity, must have a record of such an impairment, or must be regarded as having such an impairment. While people have the right to file charges, not all charges are meritorious. EEOC investigators are instructed to analyze whether a charging party has an ADA-protected disability. If an individual does not have a substantially limiting impairment (and does not allege "record of" or "regarded as" discrimination), the complaint is dismissed.

The information in this fact sheet came from the following sources: The U.S. Equal Employment Opportunity Commission and the U.S. Justice Department.

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OTHER SPECIAL EDUCATION/DISABILITY LEGAL CASES

Court to Hear ADA Suit Over Cruise Ships: Spector v. Norwegian Cruise Line

The Supreme Court on Tuesday agreed to consider whether foreign cruise lines sailing in U.S. waters must comply with a federal disabilities law requiring better access to passengers in wheelchairs. The case seeks to determine what Congress intended when it passed the landmark American Disabilities Act in 1990 barring discrimination against the disabled in the enjoyment of services in places of "public accommodation." Disabled groups, who boarded a Norwegian Cruise Line in Houston in 1998, say they weren't given adequate access to ship pools, restaurants and emergency equipment. In other situations, they alleged they were forced to pay additional fees for wheelchair accessible rooms, inhibiting their rights to "participate fully in society." For more detailed information, go to http://www.usatoday.com/travel/news/2004-09-28-cruise-scotus_x.php or http://www.adn.com/24hour/nation/story/1691838p-9475314c.php

Mother Sues, Alleges Abuse in Special Education

Today, Ann Gaydos looks back in horror and asks herself how she could have kept sending her child back into that classroom. Her daughter, Paige, has a form of autism that put her in a special education class in Cupertino. Over several months, Gaydos said, Paige's teacher subjected her to a series of abuses -- ranging from pushing her to the floor and sitting on her, to rubbing a burrito in her face. Gaydos has filed a civil suit to be heard in November against Cupertino Union School District, for unspecified damages. To read the full article, go to http://www.mercurynews.com/mld/mercurynews/living/education/9778849.php?1c

Bush Signs Youth Suicide Prevention Bill-Grants Include Money for Early Intervention

President Bush on Thursday signed into law a bill authorizing $82 million in grants aimed at preventing suicide among young people. "The law authorizes $82 million over three years to provide grants to states, Indian tribes, colleges and universities to develop youth suicide prevention and intervention programs. It emphasizes screening programs that identify mental illness in children as young as sixth-graders, and provides referrals for community-based treatment and training for child care professionals." For more details, visit: http://www.cnn.com/2004/ALLPOLITICS/10/21/youth.suicide.law.ap/index.php

Quadrapalegic Attorney Settles “Apprentice Lawsuit”

Quadriplegic attorney James Schottel Jr. settled his lawsuit against the producers of NBC's "The Apprentice" after they agreed to make clear that the show accepts applications from people with disabilities. Schottel claimed that the show's online application was discriminatory in requiring that would-be contestants be in "excellent physical health".http://www.msnbc.msn.com/id/7141917/

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NO CHILD LEFT BEHIND (NCLB)—WHAT’S THE LATEST WITH NCLB?

No Child Left Behind-Standard Technology for Students with Disabilities

Students with blindness, low vision and print disabilities are expected to gain improved access to textbooks thanks to a voluntary standardized format for electronic files now available, U.S. Secretary of Education Rod Paige recently announced.


Textbooks and classroom materials produced according to this voluntary benchmark, called National Instructional Materials Accessibility Standard (NIMAS), will be in an electronic format that can be adapted to create products ranging from Braille editions of textbooks to on-screen displays of text and graphics. In past years, the lack of a standardized format meant that publishers had to produce materials in multiple formats—often causing delays that meant students with disabilities did not receive their textbooks in time for the beginning of the school year.


To address these challenges, the U.S. Department of Education's Office of Special Education Programs provided funding to the National Center on Accessing the General Curriculum at the Center for Applied Special Technology, Inc. (CAST) to convene an expert panel to establish a voluntary, standardized format for materials. The 40-member panel included educators, publishers, technology specialists and advocacy group members.
In addition, the Education Department recently awarded CAST two grants to support further development of NIMAS and to provide technical assistance to states that are implementing the standard, in order to improve academic results for students with disabilities.


For more information on the National Instructional Materials Accessibility Standard, visit www.cast.org/NFF/NIMAS.

Making the No Child Left Behind Act Work for Children Who Struggle to Learn: A Parent's Guide (2004)-Guidebook

Two national organizations, the National Center for Learning Disabilities (NCLD) and Schwab Learning, have collaborated to develop a handbook designed to provide simple, accessible information for parents on the No Child Left Behind Act. The guide addresses the special issues, challenges and opportunities facing parents of children who struggle to learn. Available in PDF (22 pages). For more details, visit: http://www.ld.org/NCLB/NCLB.cfm

New National Survey Shows Public Support for No Child Left Behind Act is Increasing; Recent Negative Attacks & Distortions on Education Reform Law Have Fallen Flat

Washington, D.C. – U.S. House Education & the Workforce Committee Chairman John Boehner (R-OH) today called attention to a new national survey that shows public support for the No Child Left Behind education reform law is significant and rising, even after many weeks of negative attacks and distortions by education reform opponents. The national survey of 1,000 people, released today by Americans for Better Education (ABE), was conducted by The Winston Group on October 11-12, 2004, and has an error margin of plus or minus 3 percentage points.


“These results show strong and growing support for the No Child Left Behind Act and its emphasis on high standards over government spending increases,” Boehner said. “Americans are far more concerned about children passing through our schools without learning to read than they are about students facing too many tests. They support testing teachers and making sure they’re qualified. They aren’t buying the negative rhetoric about funding, and they certainly aren’t supportive of lowering standards or making it easier for states or school districts to hide the fact that some children are not learning.”


Among the poll’s key findings:


-Support for NCLB is growing stronger among the American public, with support highest among African-Americans and parents of children in public schools. President Bush’s No Child Left Behind law is viewed favorably by the American public (58% favorable, 28% unfavorable). African-Americans have a favorable view of No Child Left Behind at a higher margin (62%-25%) than the national number. A majority of Hispanics (54%-24%) view NCLB favorably and support among parents of children in public schools remains strong (62%-28%).


-High standards and accountability trump spending. Americans continue to overwhelmingly support the philosophy of standards and accountability, over increased spending. A whopping 61% believe raising standards and accountability are more important to improving
America’s schools than increasing funding (32%).


-Americans believe the federal government should hold states and schools accountable for results when they use federal education funds. Americans overwhelmingly (72%) continue to believe the federal government should be able to hold states and local schools accountable for using federal funds to improve student achievement; only 25% do not.


-More Americans are seeing a local impact. 43% of Americans are aware of changes in their local schools as a result of President Bush’s No Child Left Behind law, compared to 33% in an ABE survey conducted earlier this year.


Americans do not believe students take too many tests. Asked which is the bigger problem -- children passing through U.S. schools without learning to read, or children being forced to take too many tests -- Americans overwhelmingly (74%) believe the more important problem in education is that children are passing through schools without learning to read. Only 19% believe the bigger problem is too many tests.

New Parent Guide on NCLB

The National Center for Learning Disabilities (NCLD) and Schwab Learning have developed a useful handbook called Making the "No Child Left Behind Act" Work for Children Who Struggle to Learn: A Parent's Guide. The guide describes ways that parts of NCLB that can be used by parents of children with disabilities to improve educational services for their children. In particular, it discusses the law’s emphasis on accountability, Adequate Yearly Progress (AYP) and its effects on children with learning disabilities, and the consequences to schools if they do not make AYP. The guide is available on the Web sites of both organizations:


www.LD.org/NCLB
www.SchwabLearning.org/NCLB



More on NCLB from NCLD

NCLD (the National Center for Learning Disabilities) addresses policies that impact students with learning disabilities, particularly with respect to their full participation in the general curriculum. What policy recommendations does NCLD make? Find out on a spectrum of issues: access to the general curriculum, high-quality teachers and paraprofessionals, conditions of teaching, access to accommodations, appropriate use of test results, fair treatment of subgroups, parent involvement, full funding of NCLB and IDEA, and monitoring NCLB implementation. Visit:


www.ld.org/advocacy/nclb_policy.cfm



NCLB Implementation in Rural America

The United States Government Accountability Office (GAO) has released the report, No Child Left Behind Act: Additional Assistance and Research on Effective Strategies Would Help Small Rural Districts. Officials in small rural districts, the GAO reports, are having difficulty providing teacher development opportunities and identifying effective remedial services that would improve student performance. GAO recommends that the Department of Education "provide additional assistance on approaches small rural districts to address their unique challenges." It was also recommended that the Department support research on effective strategies to improve student performance in small rural districts through the new rural education research center it funded in September 2004.The report is available online at:

www.gao.gov/new.items/d04909.pdf. Highlights are posted at:
www.gao.gov/highlights/d04909high.pdf

Close-Up: No Child Left Behind—What Works Clearinghouse

The U.S. Department of Education's Institute of Education Sciences created the What Works Clearinghouse (WWC) in 2002 to provide educators, policy-makers, researchers and the public with a central and credible source of scientific evidence about what works in education, thus facilitating decisions about which strategies for learning to implement in schools. Through a series of databases and reports, the WWC provides ongoing reviews of the effectiveness of educational interventions—programs, products, practices and policies—designed to improve student outcomes.

To ensure the quality of these efforts, a technical advisory group composed of research experts helps to establish the standards for reviewing research, outlines the methodological aspects of the evidence reviews, and provides guidance to WWC contractors. The clearinghouse is administered through a contract to a joint venture of the American Institutes for Research and the Campbell Collaboration.

Recently, the WWC reviewed research available on mathematics programs for grades six through nine. It concluded in a report released last month that only a small number of the nation's middle school mathematics curricula have scientific evidence of effectiveness. A review of more than 800 studies of math programs identified 10 evaluations that met evidence standards developed for the Department by the WWC. These evaluations covered five math curricula, two of which showed significant improvement in student learning. The WWC is keeping its review of mathematics programs open to consider new studies, for which it will provide updates reflecting later reviews.

Additionally, clearinghouse officials stressed that the absence of scientific evidence of effectiveness does not mean that a curriculum is ineffective; rather, it indicates the lack of documentation for how well the curriculum works. Please note that the Department does not endorse curricula.

Future clearinghouse reviews to be released in the coming months will focus on beginning reading and character education. For more information about the What Works Clearinghouse, visit http://whatworks.ed.gov/.

Making the "No Child Left Behind Act" Work for Children Who Struggle to Learn

Here is a guide to introduce parents to several key parts of NCLB that they can use as tools to improve educational services for their child. The 22-page document begins with an overview of the law. It then covers individual provisions of the law and ways that those provisions may help your child. These provisions include:

Increased Focus on Reading
Improved
Opportunity to Learn
Better-TrainedTeachers
School Accountability through Student Assessments
Increased Parent Involvement
Options for Students in Low-Performing Schools.

Making the "No Child Left Behind Act" Work for Children Who Struggle to Learn is the result of collaborative work between the National Center for Learning Disabilities and Schwab Learning. It's available online at:
www.ld.org/NCLB/MakingNCLBwork.pdf

A Guide to Education under the No Child Left Behind Act--Homework Help

The Department of Education has developed another resource to help readers understand the No Child Left Behind Act (NCLB). A Guide to Education and No Child Left Behind gives a general overview of the provisions of the law. It also describes how education affects the economy, provides statistical information about education, and charts expenditures and achievements in education. The guide is available from Ed Pubs (1.877.433.7827, edpubs@inet.ed.gov, www.ed.gov/pubs/edpubs.php). It's also online at:
www.ed.gov/nclb/overview/intro/guide/index.php

Close-Up:No Child Left Behind—Improving Student Achievement Through Technology

The technology that has so dramatically changed the world outside the classroom is now changing the environment within it. According to a new report from the U.S. Department of Education, at least 15 states provide some form of virtual schooling to supplement regular classes or to provide for special needs students, and about 25 percent of all public schools now offer some type of e-learning or online instruction.

Toward a Golden Age in American Education: How the Internet, the Law and Today's Students Are Revolutionizing Expectations examines the state of educational technology and offers recommendations for maximizing its contribution to improving education. It also focuses on the role of the No Child Left Behind Act in bridging the "digital disconnect" between Internet-savvy students and their schools in order to align technology with improved learning.

The 68-page report, which serves as the Department's National Education Technology Plan, details seven major steps, which address: leadership; funding; teacher training; the development of e-learning and virtual schools; greater access to broadband communications; the transition from print to digital media; and the integration of data systems, such as technology-based assessments of student performance.

In addition, the report also profiles a sample of pioneering schools and school districts across the country—in Alaska, California, Florida, Missouri and Virginia—along with state initiatives—in Arkansas, Idaho, Louisiana, New Mexico, Pennsylvania, Virginia and West Virginia—that have successfully enriched students' learning experiences through multimedia, simulations and interactive software.

For a copy of Toward a Golden Age in American Education, visit www.ed.gov/about/offices/list/os/technology/plan/2004/plan.php or call 1-877-4ED-PUBS, while supplies last.

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PARENTS—GOT THE HOMEWORK BLUES?

NAPCSE HAS GOT THE ANSWERS

Homework, at times, can bother parents as much as kids claim it bothers them. Looking for some suggestions on how to cope with your child dragging his or her feet to the study table, that project due next month, the required nightly reading, or those book reports we all remember putting off to the last moment? Here are some resources that may help.

A series of articles on the subject.
http://www.samgoldstein.com/homework/index.php

Think you're alone? Naaahhh. Try the PTA's FAQ.
http://www.pta.org//parentinvolvement/bts/a13_homeworkqa.asp

Advice from the National Education Association (NEA).
http://www.nea.org/parents/homework.php

The impact of homework on families of struggling learners.
http://cie.ed.asu.edu/volume6/number4/

Homework and students with disabilities.
Research Connections in Special Education from 2001 offers help.
http://ericec.org/osep/recon8/rc8cov.php

Surviving the homework war with children with AD/HD.
http://www.schwablearning.org/index.asp
At the top right, select “Homework” from the drop-down menu box asking you to “Select a topic to search.”

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THE NATIONAL INSTITUTE OF HEALTH (NIH)—ARTICLES THAT AFFECT CHILDREN WITH SPECIAL NEEDS

NIH Funds Centers to Study Islet Transplantation

The National Institutes of Health (NIH) announced today that it plans to award about $75 million over five years to five clinical centers and a data coordinating center to conduct studies of islet transplantation in patients with type 1 diabetes. The network includes centers located in Iowa City, Miami, Minneapolis and Philadelphia, as well as in Edmonton, Canada, and Uppsala, Sweden.

The studies will focus on improving the safety and long- term success of methods for transplanting islets, the insulin-producing cells of the pancreas, in people whose own islets have been destroyed by the autoimmune process that characterizes type 1 diabetes. Some studies will focus on improving combined islet and kidney transplants in patients with type 1 diabetes and kidney failure, a common complication of diabetes.

"This award accelerates studies of an experimental approach that could be very promising for some people with severe type 1 diabetes if specific barriers can be overcome," said Dr. Thomas Eggerman, who oversees the consortium for the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). Two institutes of the National Institutes of Health (NIH) -- the NIDDK and the National Institute of Allergy and Infectious Diseases (NIAID) -- sponsor the consortium.

Type 1 diabetes accounts for up to 10 percent of diagnosed cases of diabetes in the United States (up to 1 million people). This form of diabetes usually strikes children and
young adults, who need several insulin injections a day or an insulin pump to survive. Insulin, though critical for controlling blood glucose, is no cure. Most people with
type 1 diabetes eventually develop one or more complications, including damage to the heart and blood vessels, eyes, nerves, and kidneys.

This NIH News Release is available online at: http://www.nih.gov/news/pr/oct2004/niddk-04.php


NIMH Grant to Explore Genetics of Autism

The National Institute of Mental Health (NIMH), part of the National Institutes of Health, announced this week a 3-year, $3 million grant to Johns Hopkins University to study the genetic factors underlying autism. In an average year, 2 to 6 new cases of Autism, a neuropsychiatric disorder, arise per 1,000 children. While at least 80 percent of the disorder is due to hereditary factors, experts believe it develops from an interaction between environmental factors and multiple unknown genes. The Johns Hopkins research team, led by Aravinda Chakravarti, Ph.D., proposes to use new genetic analysis technologies to dissect the complex neuropsychiatric traits of autism.

"Although the role of hereditary factors in autism is not in doubt, their nature remains elusive and no single causal gene has yet been identified," said NIMH Director Thomas R. Insel, M.D. "This initiative is part of a group of projects put forward by NIMH to begin unraveling the underlying genetics of autism."

The study will apply novel statistical methods and molecular technologies to identify specific genetic markers, or polymorphisms -- naturally-occurring genetic variations -- that may be related to autism. To accomplish this, the researchers will use DNA and clinical data from the NIMH Human Genetics Initiative (http://www.nimhgenetics.org) and the Autism Genetic Research Exchange (http://www.agre.org), two large repositories of research resources available to the scientific community. The investigators aim to identify specific gene variants that contribute to vulnerability to autism. This NIH News Release is available online at: http://www.nih.gov/news/pr/oct2004/nimh-12a.php


Psychotherapy and Medications are Best for Youth with Obsessive Compulsive Disorder (OCD)

Children and adolescents with Obsessive Compulsive Disorder (OCD) respond best to a combination of both psychotherapy and an antidepressant, a major clinical trial has found. Supported by the National Institutes of Health's (NIH) National Institute of Mental Health, the study recommends that treatment begin with cognitive behavior therapy (CBT), either alone or with a serotonin reuptake inhibitor (SSRI) antidepressant. The research spotlights the need for improved access to CBT, since most young people with OCD currently receive only the antidepressant, often combined with an antipsychotic medication.

John March, M.D., Duke University, Edna Foa, Ph.D., University of Pennsylvania, and colleagues report on the findings of the Pediatric OCD Treatment Study POTS) in the October 27, 2004 "Journal of the American Medical Association (JAMA)." Ninety-seven 7-17 year-olds with OCD completed 12 weeks of treatment with either CBT, the SSRI sertraline, the combination treatment, or a placebo. Independent evaluators, blind to their treatment status, assessed each patient every four weeks. Patients in the study were typical of patients seen in clinical practice. For example, while industry-sponsored trials commonly exclude patients with more than one condition, 80 percent of study participants had at least one additional psychiatric disorder.

Combining sertraline and CBT was more effective than treatment with just one or the other. CBT alone did prove superior to sertraline, which, in turn, was better than a placebo. By the end of the trial, the remission rates were 53.6 percent for combined treatment, 39.3 percent for CBT, 21.4 percent for sertraline, and 3.6 percent for placebo. CBT alone was more effective in the University of Pennsylvania site than at DukeUniversity site, but the combination treatment was equally effective at both sites, suggesting that it may be less susceptible to setting-specific variations. The strong showing of CBT at the University of Pennsylvania led the researchers to recommend it as "a first line option" for initial treatment.

They point out, however, that "only a small minority" of children and adolescents with OCD receives such state-of- the-art care.

"In the Treatment of Adolescents with Depression Study, which compared CBT with an SSRI and combination treatment, for teens with depression, the medication proved superior to CBT. In this case the reverse was true but in both studies, combination was superior. This underscores that different disorders in adolescents respond to different treatments," noted NIMH Director Thomas Insel, M.D.

"We believe that the results of this study will contribute to the appreciation by non-physician mental health clinicians of the strengths and limitations of pharmacological treatments and to the appreciation by physicians of the evidence-based psychosocial treatments," states the article. "It is imperative that the focus of research turn to identifying and testing dissemination strategies for CBT," the researchers add.

To learn more, visit:

Obsessive Compulsive Disorder (OCD):
http://www.nimh.nih.gov/HealthInformation/ocdmenu.cfm

Treatment of Adolescents with Depression Study (TADS):
http://www.nimh.nih.gov/press/prtads.cfm

Depression in children and adolescents:
http://www.nimh.nih.gov/HealthInformation/depchildmenu.cfm

http://www.ihdi.uky.edu/nectc/DATABASES/search.aspx

Brains of People with Autism Recall Letters of the Alphabet in Brain Areas Dealing with Shapes-Finding Supports Theory That Autism Results From Failure of Brain Areas To Work Together

In contrast to people who do not have autism, people with autism remember letters of the alphabet in a part of the brain that ordinarily processes shapes, according to a study from a collaborative program of the National Institute of Child Health and Human Development of the National Institutes of Health.

The study was conducted by researchers in the NICHD Collaborative Program of Excellence in Autism (CPEA) at the University of Pittsburgh and CarnegieMellonUniversity. It supports a theory by CPEA scientists that autism results from a failure of the various parts of the brain to work together. In autism, the theory holds, these distinct brain areas tend to work independently of each other. The theory accounts for observations that while many people with autism excel at tasks involving details, they have difficulty with more complex information.

The study and the theory are the work of Marcel Just, Ph.D., Professor of Psychology at CarnegieMellonUniversity in Pittsburgh, Pennsylvania and Nancy Minshew, M.D., Professor of Psychiatry and Neurology at the University of Pittsburgh School of Medicine and their colleagues. The study is scheduled for on-line publication November 29 in the journal "Neuroimage," at http://www.sciencedirect.com.

"This finding provides more evidence to support a promising theory of autism," said Duane Alexander, M.D., Director of the NICHD. "If confirmed, this theory suggests that therapies emphasizing problem solving skills and other tasks that activate multiple brain areas at the same time might benefit people with autism." This NIH News Release is available online at:
http://www.nih.gov/news/pr/nov2004/nichd-29.php


National Heart, Lung, and Blood Institute (NHLBI) Stops Study Testing How Long Children with Sickle Cell Anemia Should Have Blood Transfusions to Prevent Stroke

The National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH) has stopped early a clinical trial studying whether children with sickle cell anemia at high risk for stroke could at some point after a minimum of 30 months (range 30-91 months) safely stop receiving the periodic blood transfusions that prevent strokes. The study found a return to high risk of stroke in children who stopped receiving the transfusions. The NHLBI is issuing a clinical alert on the study's results to inform physicians who treat children with sickle cell anemia.

The alert advises physicians that stopping transfusions cannot be recommended. The document urges them to carefully discuss with patients and their families the stroke prevention benefits of continuing periodic transfusions as well as the risks of these transfusions, which can include such long-term side effects as iron overload. Management of these side effects should also be discussed, according to the alert. The entire NIH News Release is available online at:
http://www.nih.gov/news/pr/dec2004/nhlbi-05.php

U.S.-Born Mexican Americans and Non-Hispanic Whites at Increased Risk for Psychiatric Disorders -Findings Raise New Questions About Influence of Culture

According to the results of a National Institutes of Health (NIH) study, reported in the December issue of the Archives of General Psychiatry (Volume 61), Mexican Americans and non-Hispanic Whites born in the United States have a higher risk for developing psychiatric disorders than their foreign-born counterparts who have immigrated to the United States. The psychiatric disorders included alcohol and drug use disorders, major depression, dysthymia, mania, hypomania, panic disorder, social and specific phobia, and general anxiety disorder.

Based on the 2001-2002 National Epidemiologic Survey on Alcohol and Related Conditions (NESARC), the analysis is the first to consider immigration status in conjunction with psychiatric morbidity in each of four comparison groups: U.S.-born Mexican Americans, Mexican immigrants to the United States, U.S.-born non- Hispanic Whites, and non-Hispanic White immigrants to the United States.

Earlier studies compared psychiatric disorder rates among U.S.- and foreign-born Mexican Americans to either rates for U.S.-born non-Hispanic Whites or rates for the entire U.S. population, thereby confounding immigration status and ethnicity.

"The remarkable pattern seen in these results defies explanation based on current knowledge," according to George Kunos, M.D., Ph.D., Scientific Director, Division of Intramural Biological and Clinical Research at the National Institute on Alcohol Abuse and Alcoholism (NIAAA), the NIH institute that conducted the study. "Additional careful research is required to fully understand the influences of individual and environmental factors in the causes of psychiatric disorders."

For a copy of the study, media representatives may contact the NIAAA Press Office or mediarelations@jama-archives.org. Full text is available at http://www.archgenpsychiatry.com.

ADHD Linked to Mom's Iodine Levels

A group of Italian researchers is recommending routine thyroid-function screening for women during early pregnancy, because they believe attention deficit and hyperactivity disorder (ADHD) in children may be associated with an iodine deficiency in mothers. Based on a study that lasted almost 10 years, the Italian researchers believe that hypothyroxinemia in mothers during pregnancy may increase the risk of ADHD in their children. The researchers followed the children of 16 women in an area of the Italian island Sicily where iodine deficiency is common, comparing them to children in a region where iodine is sufficient. ADHD was diagnosed in 11 of the 16 children from the iodine-deficient area, but in none of the children in the comparison group. For more information, visit:
http://www.reuters.com/newsArticle..php?type=healthNews&storyID=7347208

Eating at Fast Food Restaurants, Weight Gain, and Insulin Resistance in Young Adults

Young adults who eat frequently at fast-food restaurants gain more weight and have a greater increase in insulin resistance in early middle age, according to a large multi-center study funded by the National Heart, Lung, and Blood Institute (NHLBI) and published in the January 1 issue of "The Lancet"*.

After 15 years, those who ate at fast-food restaurants more than twice each week compared to less than once a week had gained an extra ten pounds and had a two-fold greater increase in insulin resistance, a risk factor for type 2 diabetes. Diabetes is a major risk factor for heart disease.

"Obesity and diabetes are on the rise in this country and this important study highlights the value of healthy eating habits," said NHLBI Acting Director Barbara Alving, M.D.

Fast-food consumption has increased in the
United States over the past three decades. "It's extremely difficult to eat in a healthy way at a fast-food restaurant. Despite some of their recent healthful offerings, the menus still tend to include foods high in fat, sugar and calories and low in fiber and nutrients," said lead author Mark Pereira, Ph.D., assistant professor of epidemiology at the University of Minnesota. People need to evaluate how often they eat meals at fast-food restaurants and think about cutting back, according to Pereira.

One reason for the weight gain may be that a single meal from one of these restaurants often contains enough calories to satisfy a person's caloric requirement for an entire day.

Participants were asked during the physical examinations given as part of the study how often they ate breakfast, lunch or dinner at fast-food restaurants. Researchers found that the adverse impact on participants' weight and insulin resistance was seen in both blacks and whites who ate frequently at fast-food restaurants, even after adjustment for other lifestyle habits.

Study participants included 3,031 young black and white adults who were between the ages of 18 and 30 in 1985-1986. The participants, who were part of the Coronary Artery Risk Development in Young Adults (CARDIA) study, received dietary assessments over a 15-year period. CARDIA centers are located in
Birmingham, AL, Chicago, IL, Minneapolis, MN, and Oakland, CA.

According to the study, men visited fast-food restaurants more frequently than women and blacks more frequently than whites. Black men reported an average frequency of 2.3 visits per week in 2000-01. White women had the lowest frequency, at an average of 1.3 visits per week in 2000-01.

"It is important to watch carefully what you eat, especially at a fast-food restaurant. Knowing the nutritional content is important. Consumers may want to ask for this information," said NHLBI's Gina Wei, M.D., project officer for CARDIA. Salads and grilled foods tend to be lower in fat than fried foods, she said.

Keep portion sizes small, and ask that high-fat sauces and condiments, such as salad dressing and mayonnaise, be "on the side" and use them sparingly to reduce calories, Wei said.

This NIH News Release is available online at:

http://www.nih.gov/news/pr/dec2004/nhlbi-30.php

Gene That Blocks Regrowth of Hearing Cells Identified for the First Time

Researchers supported by the National Institute on Deafness and Other Communication Disorders (NIDCD) have come one step closer to understanding how hair cells regenerate, a finding that could lead to new treatments for restoring hearing. In the January 13 issue of Science magazine, scientists at the Massachusetts GeneralHospital in Boston, MA report that they could cause hair cells to regrow by blocking the action of a single gene in mice.


Regeneration of hair cells is important because hair cells are the key links in the chain of signals that makes hearing possible. Hair cells are found in the cochlear, part of the inner ear that sends the electrical signal of sound to the brain. Vibrations from the eardrum and bones of the middle ear are relayed to the cochlear, where they stimulate the hair cells. This energy is converted to electrical signals that are carried by nerves to the brain and interpreted as sound.


In the current study, the researchers isolated a gene that was activated in the ear during the mouse life cycle. The gene, Rb1, encodes for the retinoblastoma protein, which has various functions throughout the body, including acting as a molecular switch to stop the growth of hair cells. Mice that were bred to be missing the retinoblastoma gene were found to have more hair cells than control mice. Mature hair cells grown in culture dishes also were able to regenerate when the retinoblastoma gene was blocked.
Dr. James Battey, director of NIDCD has called this discovery "a very important first step toward learning" how to restore hearing in human patients. Hearing loss is one of the most common conditions affecting older adults.


Most deafness occurs because hair cells are damaged either by disease, injury or aging. Humans are born with about 50,000 inner ear hair cells, but the number gradually declines over time. Once these cells are lost, they cannot be restored.


Although the studies were done in mice, the mouse ear structure is very similar to that of humans. The next step will be to develop methods to reversibly block the Rb1 gene in inner ear hair cells to see if hair cells regenerate and hearing can be restored.



International Coalition to Fund Autism Genetics Research

An international public/private partnership of government health agencies and private advocacy organizations has committed more than $21 million for research to identify the genes associated with autism spectrum disorders, a range of developmental disorders that impair communication and other mental abilities. The National Institutes of Health (NIH) is spearheading the coalition, whose members include the Canadian and Irish governments and three private autism foundations.

The coalition recently issued a Request for Applications (RFA), "Identifying Autism Susceptibility Genes," which has an application receipt date of April 15, 2005. Applications will undergo peer review during July 2005. The coalition will award funding for the research project in the fall of 2005 and expects to fund two to three organizations to participate in the 5-year project.

"NIMH appreciates the challenge of leading this impressive team," said Thomas R. Insel, M.D., director of the NIMH, the lead organization in the effort. "This remarkable partnership shows what can be accomplished when public/private efforts join forces. This international approach can advance the autism field by leaps and bounds."

With three to six new cases per 1,000 children, autism is more common than several other disabling but better-understood diseases of childhood, such as type 1 diabetes and cystic fibrosis. Symptoms of autism, a complex neuropsychiatric syndrome, include varying degrees of impairment in communication and social skills, and restricted, repetitive, and stereotyped patterns of behavior. While heredity, in the form of multiple genes, appears to be a major determinant of whether a particular individual develops autism, experts believe that environmental influences also play a significant role.

Researchers have already reported progress on the genetic underpinnings of autism. There are reports of several chromosomal regions associated with the disorder, but few specific genes have been identified. The RFA is intended to advance knowledge of the relation between genetics and autism by examining existing data for genes and gene variants that confer susceptibility to autism. The RFA also requires researchers to assess the functional significance of autism-associated genetic variants. This research may provide a means to subdivide autism spectrum disorders into identifiable, distinct disorders, with different molecular mechanisms.

This NIH News Release is available online at:


http://www.nih.gov/news/pr/dec2004/nimh-28.php

Mothers’ Exposure to Air Pollutants Linked to Chromosome Damage in Babies

A new study of 60 newborns in New York City reveals that exposure of expectant mothers to combustion-related urban air pollution may alter the structure of babies' chromosomes while in the womb. While previous experiments have linked such genetic alterations to an increased risk of leukemia and other cancers, much larger studies would be required to determine the precise increase in risk as these children reach adulthood.

The air pollutants considered in this study include emissions from cars, trucks, bus engines, residential heating, power generation and tobacco smoking. These pollutants can cross the placenta and reach the fetus.

The study was funded by the National Institute of Environmental Health Sciences, part of the National Institutes of Health, the U.S. Environmental Protection Agency, and other private foundations. The research was conducted by scientists from the
ColumbiaUniversityCenter for Children's Environmental Health. Study results will be published in the February issue of "Cancer Epidemiology Biomarkers and Prevention", and are available online at http://cebp.aacrjournals.org.

"This is the first study to show that environmental exposures to specific combustion pollutants during pregnancy can result in chromosomal abnormalities in fetal tissues," said Kenneth Olden, Ph.D., the director of NIEHS. "These findings may lead to new approaches for the prevention of
certain cancers."

Researchers monitored exposure to airborne pollutants, known as polycyclic aromatic hydrocarbons (PAHs), among non-smoking African-American and Dominican mothers residing in three low-income neighborhoods of
New York City -- Harlem, Washington Heights and the South Bronx.

"Although the study was conducted in Manhattan neighborhoods, exhaust pollutants are prevalent in all urban areas, and therefore the study results are relevant to populations in other urban areas," said Dr. Frederica P. Perera, director of the Columbia Center for Children's Environmental Health and senior author of the study.

Exposure to combustion pollutants was assessed through personal questionnaires and portable air monitors worn by the mothers during the third trimester of their pregnancies. Researchers then calculated the concentration of air pollution to which each pregnant woman and her baby were exposed. Study participants exposed to air pollution levels below the average were designated as having "low exposure," while those exposed to pollution levels above the average were designated as having "high exposure."

"We observed 4.7 chromosome abnormalities per thousand white blood cells in newborns from mothers in the low exposure group, and 7.2 abnormalities per thousand white blood cells in newborns from the high exposure mothers," said Perera. "In particular, stable alterations were increased, which are of greatest concern for potential risk of cancer, since cells with this type of abnormality can persist in the body for long periods of time."

Chromosomal abnormalities were measured in umbilical cord blood by a "chromosome painting" technique called fluorescence "in situ" hybridization, one that enabled researchers to observe the structural changes within the chromosome. Chromosomes are the threadlike packages in the nucleus of the cell that contain the cell's genetic information.

"This evidence that air pollutants can alter chromosomes "in utero" is troubling since other studies have validated this type of genetic alteration as a biomarker of cancer risk," said Perera. "While we can't estimate the precise increase in cancer risk, these findings underscore the need for policymakers at the federal, state, and local levels to take appropriate
steps to protect children from these avoidable exposures."

Previous studies conducted by Perera and colleagues showed that combustion-related air pollutants significantly reduce fetal growth, which may affect cognitive development during childhood.

The study is part of a broader, multi-year research project, "The Mothers & Children Study in New York City," started in 1998, which examines the health effects of exposure of pregnant women and babies to air pollutants from vehicle exhaust, the commercial burning of fuels, and tobacco smoking, as well as from residential use of pesticides and allergens.

The National Institute of Environmental Health Sciences is a federal agency that conducts and funds basic research on the health effects of exposure to environmental agents.

For more information, please contact John Peterson, public affairs specialist with the NIEHS Office of Communications, at (919) 541-7860, or call Heather Ross, senior media specialist with the
ColumbiaCenter for Children's Environmental Health, at (212) 576-2700, ext. 243.

Scientists Use Gene Therapy to Restore Hair Cells in Deaf Guinea Pigs

Researchers supported by the National Institute on Deafness and Other Communication Disorders successfully used gene therapy to grow new hair cells and restore hearing in deaf guinea pigs. This is the first time researchers have been able to restore structural and functional levels to auditory hair cells in live adult mammals. Scientists at the University of Michigan's MedicalSchool inserted a gene called Atoh1, a key regulator of hair cell development into non-sensory epithelial cells that were in the inner ears of adult guinea pigs whose original hair cells were destroyed by exposure to ototoxic drugs. An adenoviral vector was used to deliver the Atoh1 gene into the left ears of ten guinea pigs whose hair cells had been destroyed; deaf guinea pigs that were not administered the gene served as matched controls, and the animals right ears served as an additional control. Eight weeks after treatment they found new hair cells in the ears treated with Atoh, and auditory testing confirmed that the generation of hair cells coincided with restoration of auditory threshold levels. The researchers caution that restoring auditory threshold levels is not the same as restoring normal hearing and it will be several years before Atoh1 gene therapy will be ready to test in humans. This study is an important advance in hearing research, and the findings bring scientists one step further in the search for new ways to treat hearing loss that affects approximately 28 million Americans.

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OTHER ARTICLES OF INTEREST FOR PARENTS WITH CHILDREN IN SPECIAL EDUCATION

Emergency Preparedness and Individuals with Disabilities

This summer the National Organization on Disability (NOD) and the U.S. Government created the Individuals with Disabilities Emergency Preparedness Council as part of the U.S. Department of Homeland Security. This council will work to ensure that the special needs of individuals with disabilities are included in plans for preventing and reacting to natural and man-made disasters.

Read the Executive Order and see the functions of the new Council at:
www.responsetrack.net/lnk/nod31930/?112TG011ODB

Streaming Allows Deaf to Learn Online

The spread of high-speed Internet is improving distance learning for the deaf through transmissions smooth enough to allow sign language instruction. Educators are increasing the use of video streaming - the progressive feeding of small chunks of information that can be viewed as they are downloaded - to supplement onsite teaching. Some hope the technology will enable them eventually to offer full degrees online. For more details, visit http://www.enquirer.com/editions/2004/10/04/loc_loc3deaf.php

Online Learning: A Smart Way to Nurture Gifted Kids

With online learning, the newest wave of education, gifted students can take classes local schools can't offer and learn at their own frenetic pace. For the full story, visit:
http://www.usatoday.com/printedition/news/20040928/oplede28.art.php

Union Seeks Streamlining for Special Ed Formula

New York State United Teachers is looking to streamline the state's complex formula for funding special education services and make it more equitable for students and their districts. "Any revised formula should be simple and ensure adequate resources for acceptable student achievement," said NYSUT Second Vice President Maria Neira, who took part in one of four State Education Department regional forums on special education funding in September. For more details, visit: http://www.nysut.org/newyorkteacher/2004-2005/041021specialed.php

Parents Working to Eliminate Hurtful Acronym for Special Education

"You're a stupid SPED." These hurtful words are sometimes heard in the halls and playgrounds of schools throughout Brookline. SPED is an acronym for special education that has been used with increasing frequency by parents, school administrators and teachers not only in Brookline, but also in communities across the state. Yet like so many short phrases that roll off the tongue, the term has been misappropriated and used as an insult from one child to another, particularly in the middle school grades. Parents of special education students, with the support of the Brookline Public Schools, are about to change that. The Brookline Special Education Parent Advisory Council announced this week that it will no longer use the term SPED in its names or materials. The group, which formerly referred to itself as SPED-PAC, will now be called SEPAC (pronounced SEE-PACK). The Brookline Special Education Parent Advisory Council provides information and support to parents of children with disabilities in Brookline. For more details, visit:
http://www2.townonline.com/brookline/artsLifestyle/view.bg?articleid=109675



In Their Own Words: Employer Perspectives on Youth with Disabilities in the Workplace (Guidebook)

It is essential for educators, transition specialists, workforce development professionals, family members, and youth to understand employers¹ needs, circumstances, and perspectives as they establish work-based learning experiences. This publication, the latest in our ³Essential Tools² series, features the experiences of employers in their own words. Eleven employers from various fields write about how they became involved in providing work experiences for youth with disabilities, what made it work, and what they recommend to individuals and organizations representing youth. For more details, go to:
http://www.ncset.org/publications/essentialtools/ownwords/default.asp

Bullying-A Discussion and Activity Kit to Use with Children

"The Bully" tells the story of a character most of our children will recognize. It's designed to be used to stimulate discussion and problem-solving with children. Originally published as an ebook and still available online in that form, it is now also available in print form. Find out more at www.thebullybook.com/

Buddies Help Students with Autism

A state grant lets school in Howell pair peers to learn how to improve learning experience. At ChallengerElementary School, all the children are becoming part of Connor’s (a 9-year old boy with autism), educational plan. They learn how to be "peer buddies." Connor's education team hopes to make him less dependent on his full-time aide, who has been with him since kindergarten. To read more about this story, visit:
http://www.detnews.com/2004/schools/0411/01/c05l-321301.php

Research from The National Council on Disability: Designing for Inclusion- Creating a New Marketplace

Designing with access in mind can significantly increase the size of targeted markets for electronic and information technology (E&IT). Good business practice dictates that designers and engineers avoid unintentionally excluding large populations of consumers from accessing and using the E&IT they develop and manufacture. People with disabilities are at the highest risk of exclusion. Other consumer groups are also at risk. They are—
•Individuals 65+ years old
•Consumers living in low-bandwidth information infrastructures
•People who never learned to read
•Users of English as a Second Language (ESL)
•Tourists and people living in multilingual societies
•Consumers living in high-density populations


Designing with access in mind can be accomplished through universal design (UD). Universal design is a process to ensure that E&IT is inclusive, accessible, and usable by everyone, including people with disabilities. Accessible design is a step forward when developing E&IT products, but it tends to lead to technologies that will be used separately, or in addition to, the main E&IT product, which diminishes the effectiveness of designing for all. Incorporating UD processes when developing E&IT is one solution to accommodating people with disabilities that also improves the usability of the products for the rest of the population.


The National Council on Disability (NCD) undertook this research to understand the market for universally designed mainstream consumer products and services, document successful UD development processes, understand consumer needs, understand UD facilitators and barriers, and identify and address current issues in universal design. This research comes at a time when understanding and incorporating UD into the development process are most crucial. We are in the window of opportunity for implementing section 508. If progress is not made quickly in improving the skills of government and industry employees on accessibility issues, the window will soon shut with little having been accomplished. If industry does not see that federal agencies are serious about implementing section 508 in a consistent manner, companies will shift the monetary and human resources needed for improving accessibility to product development opportunities that offer a higher return on investment. Progress must be made now, and the purpose of this report is to present the information and recommendations that will guide this progress.


Through this research, NCD aims to educate designers and manufacturers about how electronic and information technology intersects with the needs of individuals with disabilities. In addition to providing knowledge about disabilities, we see the importance here and now of educating individuals on universal design. Currently, many business people have never heard of UD, and many of those who have do not understand that it is more than just a design for disability. This research aims to provide businesses with the knowledge of UD methods they need to clearly see how their complex products can be made accessible in a cost-effective way.


As part of this research, six product lines were analyzed from the telecommunications, software, consumer electronics, and digital services industries for both accessibility and usability. We estimated how useful these products are to people with disabilities and whether the products conformed to section 508 standards and section 255 guidelines. We were able to present recommendations for improving such products. At a time when the incorporation of universal design is crucial, NCD hopes that the information provided in this report will motivate and drive the development of more universally, accessibly designed E&IT.


To read the entire study by The National Council on Disability and its recommendations, visit:

http://www.ncd.gov/newsroom/publications/2004/newmarketplace.php


Deciphering A Mystery: New Research Provides Clues To The Genetic, Neurological, And Molecular Basis Of Autism

In new research, scientists have found that a specific gene contributes to autism and that autistic people have fewer receptors for the brain messenger acetylcholine, as well as more tightly packed columns of neurons in the cerebral cortex. Another study found that autistic children were less able to discriminate similar sounds than were other children. To learn more, visit: http://www.sciencedaily.com/releases/2004/10/041030131949.php

Top 10 Toys for Children with ADHD

Shire and the Oppenheim Toy Portfolio today announced the top 10 toys for children with attention-deficit/hyperactivity disorder (ADHD), along with selection criteria designed to help guide parents this season as they shop for toys for a child with ADHD. All the toy selections as well as the criteria used are posted on ADHDSupportCompany.com.


The Top 10 list of toys has been developed based on the specific needs of children with ADHD, including the need to better focus attention, to gain self-confidence and to learn to socialize and interact appropriately with other children. The selection criteria used to choose these toys may provide useful guidelines for parents to consider when shopping for toys that their child with ADHD can enjoy. Together, the toy list and criteria may help parents interact with their child and also assist them to direct the child's energy in a more productive way. To learn more, visit:


http://www.eurekalert.org/pub_releases/2004-11/pn-t1t111604.php

Parent Academy Could Help Kids Learn

Parents in Miami-Dade County could get free classes next fall -- ranging from how to talk with teachers to how to plan a family budget and how to write a résumé -- in an effort to teach them how to extend their kids' education from school into the home.


The idea of a
ParentAcademy was approved Wednesday by the Miami-Dade School Board, and though the planning is still preliminary, it is supposed to launch at the beginning of the 2005-06 school year.


Many of the classes will be designed to teach parents how to extend education from the school into the home. For more information, visit:
http://www.miami.com/mld/miamiherald/news/local/10210717.php?1c

Survey Invitation for Educators of English Language Learners and Students with Disabilities

The National Center on Educational Outcomes at the University of Minnesota invites educators with experience teaching either English language learners or students with disabilities to participate in a pilot Web survey about instructional strategies for English language learners with disabilities. The survey tests the importance and use of strategies for reading, and offers optional sections for math and science. Each of the three sections (reading, math, and science) takes about 15 minutes to complete. To learn more, visit:
http://education.umn.edu/nceo/StrategiesConsent.php

2004 National Organization on Disability/Harris Survey of Americans with Disabilities

The 2004 Harris Survey on disability trends, commissioned by the National Organization on Disability, surveyed people with disabilities. Findings showed that Americans with disabilities are at a critical disadvantage compared to other Americans in 10 key areas of life, including employment, poverty, high school dropout rates, social life, life satisfaction, job discrimination, severity of disability, and future health and well-being. Web video also available. To learn more, visit: http://www.at508.com/040624_national_press_club.cfm

Technical Sign Language Guide Goes Online

An online glossary of technical sign language has been compiled to help deaf students studying science and engineering. The British sign language glossary was compiled by researchers at the University of Wolverhampton, based upon interviews with deaf academics and professionals, to establish which signs they use in the course of their work. It features almost 2,500 online video signs for terms such as "absolute zero" and "DNA", making it the most comprehensive catalogue of technical sign language, according to the creators. For more information, visit:


http://education.guardian.co.uk/higher/sciences/story/0,12243,1392431,00.php

Reading the Brain: Technology May Soon Tell Researchers Why Some Kids Have Trouble Reading

Figuring out why a child has difficulty reading is not an exact science, but it's getting closer to that. A University of Western Ontario psychology professor, recognized recently for the excellence of his research, has been exploring ways to map the brains of readers to see what goes wrong -- and what goes right. "A lot of different things can go wrong in reading development," says Marc Joanisse. "There's more than one reason why child would be behind in reading." For more information, visit:
http://www.canoe.ca/NewsStand/LondonFreePress/Today/2005/01/24/908291-sun.php



Inclusion Efforts Help Indianapolis School Cope with Poverty, Turnover, Special Needs

There's a feeling of community, a sharing of ideas that makes our school so special that no one ever wants to leave," says Cindy Meek, a special education teacher who has taught at Paul I. Miller School 114 for 26 years.


But students do leave. During the 2002-03 school year, the
Indianapolis, Ind., school experienced a 46-percent student turnover, due in large part to families constantly having to move to find better job opportunities.


The mobility rate reflects the dire conditions surrounding School 114: many of its neighbors live in low-income housing. Because of the overwhelming poverty, every student receives a free lunch.


Yet, School 114—a 2004 No Child Left Behind Blue Ribbon School—proves that the concepts of community and diversity are not at opposite ends of the learning spectrum. During the 2002-03 school year, the single-story building was also home to 132 students who received special education services—30 percent of the 465 students who attended the school. While many of these students are immersed in regular classrooms, the school has two areas set aside for severely handicapped students, who are supported by a full-time nurse.


To meet the challenges presented by its diverse student body, the school has instituted a differentiated learning curriculum. Following periods of instruction, students break into small groups to work on targeted learning opportunities.


"Gifted students may work on enrichment activities while special education students receive focused instruction," explained Sherry Webber, a second-grade teacher in her 17th year at the at the school. "The small groups also provide an opportunity for us to work with students who need to catch up in a particular area."


For new students, teachers use the small group time to assess where they are in respect to School 114's curriculum. "When new students arrive, our teachers find out where they are academically and either help them catch up to our program or find ways to engage them if they are ahead," Principal Alan Stephens explained.


Teachers also use the small groups, such as the Young Authors program, to bring together students with different learning strengths and abilities.
"The Young Authors program is an opportunity for high- and low-achieving students to work together so everyone feels special," said Meek. As an example, she said a special education student who enjoys telling stories but cannot type may team up with another student who is able to use the computer. Together they write a story while a third student provides the illustrations.


The individual and small group attention is working. In fall 2004, 87 percent of School 114's third-graders passed the Indiana state exam in both English/language arts and math. These test scores, including those from the previous two years, have placed School 114 well above state and district averages.


"We have high expectations of our students, and our parents support us," noted Webber.


In return, School 114 celebrates the success of each of its students. The Honors Day ceremonies at the end of each quarter recognize students who excel in scholarship, attendance and good citizenship. It's not uncommon, explained Webber, for students to announce they are going to be recognized in all three areas before the school year is over.


"The awards build self-esteem," she said, noting the assemblies are a big deal. "We invite the parents and community—everyone comes." In recognition of their achievements, students are given pencils, certificates or pins.


These assemblies are just one of several programs that provide opportunities for every student to be recognized. The local Kiwanis club, a leading service organization, hosts ceremonies to recognize School 114's Terrific Kids several times a year. They also support the BUGS—Bringing Up Grades—program.


With writing as a curriculum focus, the school has instituted writer-of-the-month awards for which teachers nominate students. The school throws a pizza party for everyone who is nominated, and the winning writers' names are placed on a wall display that stays up throughout the year.


For the Young Authors program, each book is bound and includes a note about the authors. An outside panel of community members spends a full day judging the submissions. Parents are invited to read the books at the school, and winning entries are displayed in the community. The books become treasured keepsakes, said Meek, who noted that one high school student recently told her that he still has the book he prepared in her classroom.


"The recognition that comes with these programs motivates our students to go through the writing process," she explained.

National Suicide Prevention Lifeline 1-800-273-TALK

The U.S. Department of Health and Human Services’ Substance Abuse and Mental Health Services Administration (SAMHSA) today announced the launch of the National Suicide Prevention Lifeline 1-800-273-TALK. The national hotline is part of the National Suicide Prevention Initiative (NSPI)—a collaborative effort led by SAMHSA that incorporates the best practices and research findings in suicide prevention and intervention with the goal of reducing the incidence of suicide nationwide. In addition to the national hotline, a new website is being launched: www.suicidepreventionlifeline.org

In the United States, suicide currently is the 11th leading cause of death among all age groups, accounting for approximately 30,000 deaths annually. More than 100 crisis centers in 39 states currently participate in the National Suicide Prevention Lifeline. SAMHSA is committed to working with state and local organizations, such as the Mental Health Association of New York City, the National Association of State Mental Health Program Directors, and community crisis centers, to expand the availability of suicide prevention and intervention services.

The National Suicide Prevention Lifeline is funded by a 3-year $6.6 million grant from SAMHSA’s Center for Mental Health Services, which has been awarded to the Mental Health Association of New York City and its partners—the National Association of State Mental Health Program Directors, Columbia University and Rutgers University. The National Suicide Prevention Lifeline is a network of local crisis centers located in communities across the country that are committed to suicide prevention. Callers to the hotline will receive suicide prevention counseling from trained staff at the closest certified crisis center in the network. A nation-wide public education campaign to raise awareness about suicide and the national hotline is under development.



Top Ten Titles for Students with Print Disabilities Released by Recording for the Blind & Dyslexic

The Boston Unit of Recording for the Blind & Dyslexic (RFB&D) released its annual top ten lists of audio tapes ordered by students who are blind, visually impaired or who have learning disabilities.


The Boston Unit of Recording for the Blind & Dyslexic (RFB&D) released its annual top ten lists of audio tapes ordered by students who are blind, visually impaired or who have learning disabilities.

Christina Raimo, Boston Unit RFB&D Executive Director, said, “For more than 50 years, RFB&D has been the nation’s largest educational library for students who are blind, visually impaired or who have learning disabilities such as dyslexia. Here in Massachusetts, RFB&D serves over 7,500 students and more than 300 schools with its library of over 91,000 accessible textbooks.”


http://www.emediawire.com/releases/2005/1/emw193232.php

Maryland Test a Problem for Deaf Students--Questions Ask Students to Match Words by Sound

Students at the MarylandSchool for the Deaf were asked on a standardized test to match words containing similar sounds, and state education officials promised to adjust the scores after acknowledging the problem.


The state Department of Education also will ensure that questions in this year's version of the Maryland School Assessment are appropriate for hearing-impaired students, spokesman Bill Reinhard said Monday.


http://www.cnn.com/2005/EDUCATION/01/11/deaf.test.scores.ap/index.php



Bullies Target Diabetic Youths

Children and adolescents with diabetes and other hormonal disorders are at an increased risk of being bullied, teased or snubbed by classmates, a new study has found. The report, published online in the Journal of Pediatrics, found insulin-dependent diabetics particularly vulnerable to peer abuse. It raised concerns that these children might forgo medically necessary procedures such as testing their blood-sugar levels or injecting insulin to avoid being picked on.

"If you know kids may tease you because you have to go to the bathroom to check your blood sugar, or you can't eat some foods, you might begin avoiding those things," said Eric Storch, co-author of the study and an assistant professor of psychiatry and pediatrics at the University of Florida's College of Medicine.

Gary Geffken, the study's co-author, said he thinks all children with chronic medical conditions could be at heightened risk for being bullied. He said chronic illnesses of all types may require children to see medical specialists and make more visits to the doctor than their peers. This could carry a stigma, said Mr. Geffken, an associate professor of pediatrics, psychiatry and clinical and health psychology at UF.

To gain further knowledge of this study, visit:


http://washingtontimes.com/national/20041225-114049-2905r.php



Preparing for an International Career: Pathways for People with Disabilities

Mobility International USA (MIUSA), an organization that empowers people with disabilities around the world through international exchange and international development, and the National Clearinghouse on Disability and Exchange, managed by MIUSA, released this resource to encourage young adults with international interests to explore careers in the international affairs, exchange, and development fields. This document offers information on different types of international occupations, job prospects, tips to prepare for an international career, insights from role models and emerging leaders with disabilities in these fields, and international exchange and fellowship. Available in PDF (2.6 MB, 81 pages) at:


http://www.miusa.org/publications/freeresources/International%20Career%20final%20draft.pdf

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UPCOMING CONFERENCES AND EVENTS FOR PARENTS OF CHILDREN IN SPECIAL EDUCATION

April, 2005

2005 ASCD Annual Conference and Exhibit Show--Voices of Education: Unleashing the Power, Passion, and Promise

Dates: April 2–4, 2005

Location: Orange County Convention Center, West Building Orlando, FL

Sponsor: Association for Supervision and Curriculum Development (ASCD)

Contact: Association for Supervision and Curriculum Development (ASCD)
1703 N. Beauregard Street
Alexandria, VA22311-1714
(800) 933-2723 (ASCD)
(703) 578-9600 (then press 2)
Web: www.ascd.org/cms/index.cfm?TheViewID=446

DSS Policy: Accommodating Students With Disabilities With Off-Campus Placements: Who and How?

Dates: April 5, 2005

Location: Audio

Sponsor: Thompson Publishing Group Inc.

Contact: (800) 925-1878
Web: www.thompsoninteractive.com/dss.asp

Abstract: Dr. Jane Jarrow, President of Disability Access Information and Support (DAIS) and presenter who has traveled extensively presenting workshops and training sessions about the legal and educational mandates surrounding the participation of persons with disabilities in postsecondary settings, will be the primary speaker at each one of the five conferences. She will be joined for each audio conference by one of these colleagues in the field: *The Director of Disability Support Services at Rice University & former President of AHEAD in Texas, Jean Ashmore *The Director of Disability Services at the University of Colorado (Retired), Ruth Fink *The Director of Services for Students with Disabilities at the University of Michigan & former President of AHEAD, Sam Goodin *The ADA Coordinator for The Ohio State University, Scott Lissner

2005 Council for Exceptional Children Convention and Expo

Dates: April 6-9, 2005

Location: The Baltimore Convention Center Baltimore, MD

Sponsor: Council for Exceptional Children (CEC)

Contact: Council for Exceptional Children (CEC)
1110 North Glebe Road, Suite 300
Arlington, VA 22201-5704
(703) 264-9454; (888) 232-7733
(703) 264-1637 (FAX)
E-Mail: victore@cec.sped.org
Web: www.cec.sped.org

Abstract: Special Features for 2005 include: *Meet the Experts *Patch Adams - CEC's 2005 keynote speaker *Gaynell Colburn - The Teacher of the Year Luncheon's keynote speaker. *Pre-convention workshops - where you gain understanding of special education teaching issues and strategies *700+ Professional Development Sessions *Strands - A way to get your questions answered by experts in the field *Networking Events - Meet colleagues as you explore Baltimore

2005 National CASA Association Conference--Growing a Better Tomorrow for Every Child

Dates: April 16-19, 2005

Location: Hyatt Regency Hotel Atlanta, GA

Sponsor: National CASA Association

Contact: National CASA Association
Attn:
Sandy Elfers
100 W.
Harrison
North Tower, Suite 500
Seattle, WA 98133-9009
(800) 628-3233, Ext. 262
(206) 270-0078 (FAX)
Web: www.casanet.org/conference/

Abstract: The National CASA Association 24th Annual Conference provides an opportunity to join consultants, legal and social service professionals as well as representatives of the entire CASA/GAL network. Through education, training, brainstorming, participants will discover new ideas and solutions for helping children.

Literacy Changes Lives--National Conference on Family Literacy

Dates: April 25-27, 2005

Location: Galt House Hotel and Suites Louisville, KY

Sponsor: National Center for Family Literacy (NCFL)

Contact: National Center for Family Literacy (NCFL)
325 West Main Street, Suite 300
Louisville, KY 40202-4237
(502) 584-1133
E-mail: conference@famlit.org
Web: www.famlit.org/Conference/index.cfm

Abstract: Each spring, NCFL presents the national conference on family literacy. Drawing approximately two thousand professionals from the literacy, research and policy fields, the National Conference on Family Literacy is a professional development opportunity.

International Meeting on Inuit and Native American Child Health: Innovations in Clinical Care and Research and 17th Annual Indian Health Service Research Conference

Dates: April 29-May 1, 2005

Location: Seattle, WA

Sponsor: American Academy of Pediatrics and the Canadian Paediatric Society, incooperation with the Indian Health Service

Contact: National Headquarters:
American Academy of Pediatrics
141 Northwest Point Boulevard
Elk Grove Village, IL 60007-1098
(847) 434-4000
(847) 434-8000 (FAX)
Web: www.aap.org/nach

Abstract: The American Academy of Pediatrics and the Canadian Paediatric Society, in cooperation with the Indian Health Service is sponsoring the first ever International Meeting on Inuit and Native American Child Health. Pediatricians, family physicians, residents, other health care professionals, clinical researchers, state and federal public health employees, child advocates, and other professionals and family representatives dedicated to working with First Nations, Inuit, and American Indian/Alaska Native (AI/AN) children should attend. Participants will have the opportunity to share ideas on culturally effective health care delivery models, present research findings, and dialogue about strategies to improve the health of First Nations, Inuit, and AI/AN children and communities.

MAY, 2005

YAI/National Institute for People with Disabilities Network's 26th Annual International Conference on Developmental and Learning Disabilities

Dates: May 9-13, 2005

Location: Crowne Plaza Manhattan Hotel New York City, NY

Sponsor: YAI/National Institute for People with Disabilities Network

Contact: Tina Sobel at (212) 273-66457 or
Aimee Horowitz at (212) 273-6255
(212) 629-4113 (FAX)
E-mail: tsobel@yai.org
or
E-mail: ahorowitz@yai.org
Web: www.yai.org

Abstract: This five-day conference will feature more than 300 speakers from throughout the United States and abroad. More than 150 seminars and workshops will focus on key issues, including: Advocacy/Self-Advocacy, Aging and Dementia, Challenging Behaviors, Clinical Issues, Day Services, Early Childhood, Employment Training and Placement, Family Support Services, Health Care, Management, Psychopharmacology for Non-Medical Staff, Recreation and Leisure, Residential Services, Sexuality and Social Skills, Special Education, Staff Training, Technology, Transitional Services, Workforce Issues. A separate social work conference, focusing on research, practices and new developments in the field, also will be held at the Crowne Plaza from May 9-11.

Head Start: The Nation's Pride--32nd Annual Training Conference

Dates: May 24-27, 2005

Location: Orlando, FL

Sponsor: National Head Start Association (NHSA)

Contact: National Head Start Association (NHSA)
1651 Prince Street
Alexandria, VA22314
(703) 739-0875
(703) 739-0878 (FAX)
(703) 739-0879 (NHSA Hotline)
Web: www.nhsa.org

Abstract: The National Head Start Association is a private not-for-profit membership organization dedicated exclusively to meeting the needs of Head Start children and their families. It represents more than 900,000 children, 190,000 staff and 2,500 Head Start programs in the United States. The Association provides support for the entire Head Start community by advocating for policies that strengthen services to Head Start children and their families; by providing extensive training and professional development to Head Start staff; and by developing and disseminating research, information, and resources that enrich Head Start program delivery. Head Start provides comprehensive education, health, nutrition, and parent involvement services to low-income children and their families. More than 21 million pre-school aged children have benefited from Head Start.

JUNE, 2005

Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living: Strategies for Living Well

Dates: June 2-4, 2005

Location: Saint Louis, MO

Sponsor: Post-Polio Health International

Contact: Post-Polio Health International
Including International Ventilator Users Network
4207 Lindell Blvd., #110
Saint Louis, MO 63108-2915
(314) 534-0475
(314) 534-5070 (FAX)
E-mail: info@post-polio.org
Web: www.post-polio.org

Abstract: Purpose and goals of presentations are intended to ... 1. Promote greater understanding of and opportunities for healthy living by people with disabilities, specifically the survivors of polio and those who use mechanical ventilation. 2. Promote greater awareness of the power of self-help and of the independent living philosophy. 3. Propose solutions to major issues facing people with disabilities. 4. Report on the latest research, programs and developments related to post-poliomyelitis and other neuromuscular respiratory conditions. 5. Facilitate enhanced interaction between people with disabilities and health care professionals.

14th International Scientific Congress CNIC 2005: 40 Years at the Service of Science and Technology

Dates: June 27-30, 2005

Location: Havana, Cuba

Sponsor: National Center for Scientific Research

Contact: Mrs. Violeta Rodriguez Oramas
Specialist in
RelatedExhibitions
HavanaInternationalConferenceCenter
(537) 208 4398
(537) 202 8382 (FAX)
E-mail: violeta@palco.cu

Abstract: Every five years, the National Center for Scientific Research holds its International Scientific Congress in the framework of its anniversaries. The meeting has the aim to allow a gathering as well as a scientific-technical exchange among a number of national and international specialists in their research fields. Besides, it offers an excellent opportunity for showing new products and technologies from the medical, pharmaceutical and biotechnological industries. Topics include: NEUROSCIENCES 2005. Neurophysics, Cognitive Neurosciences Neurolinguistics, Neural Origin Disabilities, Schizophrenia, Autism, Hearing Losses and Phonoaudiology, Senile Dementia, Learning Problems and Behavioral Problems, Neural Plasticity and Molecular Neurobiology.

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 ACKNOWLEDGEMENTS

Portions of this e-Journal were excerpted from:

  • Committee on Education and the Workforce
  • First Gov.gov-The Official U.S. Government Web Portal
  • The National Center on Secondary Education and Transition
  • The National Collaborative on Workforce and Disability for Youth
  • The National Dissemination Center for Children with Disabilities
  • The National Institute of Health
  • U.S. Department of Education
  • U.S. Department of Education-The Achiever
  • U.S. Department of Education-The Education Innovator
  • U.S. Department of Labor
  • U.S. Office of Special Education
  • U.S. Department of Health and Human Services

The National Association of Parents with Children in Special Education (NAPCSE) thanks all of the above for the information provided for this month’s e-Journal.